| Home Forums |
|
|||||||
| Your Local Area Connect with people in your city, state, province, or region |
 |
|
|
Thread Tools | Search this Thread |
|
#1
Tue Oct 13, 2015, 07:05 PM
|
|||
|
|||
Anybody From Pittsburgh?
Anybody here from the Pittsburgh area? Just recently moved to be closer to my family during this stage in my life. I'll be getting treated at West Penn hospital. I was curious about people's experience. If any....
__________________
Kamara, 26, mother of 2.diagnosed AA July 2015, post BMT. currently on tacrolimus, acyclovir, diflucan, cipro. No sign of GVHD so far. 
|
|
#3
Wed Mar 16, 2016, 12:45 PM
|
|||
|
|||
|
Hi Kamara. I had a BMT for PNH 4 yrs ago. I had symptoms for a very long time before then, but I ignored them until I got to the point where my HGB was abt 7.4! I have some fairly mild GVHD, but it has been well managed by my doctor and associated medical staff. A lot of tests, a lot of meds and a lot of appointments, but both my doctor and I agree that my experience has been good, all things considered. Please let us know how you are doing.
Mario
__________________
MARIO, 52, DIAG IN 2011 W/ PNH, MUD IN DEC 2011. MINI TRANS PSL DENVER/ SOME MILD GVHD. CURRENTLY TAKING JAKAFI FOR GVHD.
|
|
| Thread Tools | Search this Thread |
|
|
Similar Threads
|
||||
| Thread | Thread Starter | Forum | Replies | Last Post |
| One-day Patient and Family Forum in Pittsburgh, Pennsylvania, April 18, 2015 | Marrowforums | News and Events | 0 | Mon Apr 6, 2015 05:50 PM |
| Anyone in Pittsburgh? | kayakerSN | Your Local Area | 2 | Tue Jan 27, 2015 01:11 PM |
| MDS survivors (Pittsburgh, Pennsylvania) | Mike Conlon | Your Local Area | 1 | Tue Jan 26, 2010 02:13 PM |
Im here :)
