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  #1  
Old Tue Aug 24, 2010, 09:46 PM
thatch60 thatch60 is offline
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Join Date: Aug 2010
Location: Grand Prairie, TX
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Unhappy 2010 Pediatrica Diagnosed with AA in DFW area

My 11 yr old nephew was diagnosed with severe AA. Any contacts out there that can share with my family?
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  #2  
Old Wed Aug 25, 2010, 10:29 PM
Debbie W Debbie W is offline
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Join Date: May 2010
Location: NJ
Posts: 202
Welcome thatch60

Maybe try posting this in the AA forum??? Sorry I'm no help on AA, still trying to understand MDS/AML.

Best wishes to your nephew,

Debbie

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Originally Posted by thatch60 View Post
My 11 yr old nephew was diagnosed with severe AA. Any contacts out there that can share with my family?
__________________
Debbie, wife of Mike age 58, diagnosed RAEB 2 April 2010. Initial blast count somewhere between 10-15% then 20% after two treatments of Dacogen. Completed induction therapy 8/2/2010. BMB 8/31/10 - 4% blasts. SCT 10/1/2010. Relapsed in 10/2014, second transplant from same donor on 12/31/2014.
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  #3  
Old Thu Aug 26, 2010, 09:24 PM
evansmom evansmom is offline
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Join Date: Nov 2007
Location: Ontario, Canada
Posts: 203
Hi there,

Sorry to hear about your nephew. My son was diagnosed with sAA a few years ago when he was 10. He had one round of ATG but was deemed a non-responder after nearly 6 months. He went on to have a completely successful uncomplicated bone marrow transplant using a 9/10 unrelated donor. Below is his Caringbridge site, where your family can read his entire journey start to finish.

There is hope. Your family has to learn as much as they can to be your nephew's best advocate. This forum is an incredible tool, advise them to use it.

Best wishes,
__________________
Nicole, mom to Evan (20); diagnosed SAA November 2007, hATG mid-November 2007, no response after 6 months, unrelated 9/10 BMT June 2008, no GVH, health completely restored thanks to our beloved donor Bryan from Tennessee.

www.caringbridge.org/visit/evanmacneil
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