Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > AA
Register FAQ Search Today's Posts Mark Forums Read

AA Aplastic anemia

Thread Tools Search this Thread
Old Fri Sep 2, 2011, 12:09 AM
barbes99 barbes99 is offline
Join Date: Jan 2011
Location: australia
Posts: 2
Question 3 yr old has AA

Afternoon all, I am a bit worried about my son at the moment he first fell ill when he was 9months old, he needed blood an platelet transfusion, he had know neutrafil, WBC was very low. He was diagnosed after quite of few test when he was 14 months old with severe aplastic anemia. He started ATG, an was on Cyclosporine for a year. During this time we did IVF to make our beutiful son Jayden who is the perfect bone marrow match. Once Anthony finished his medication, a month later he relapsed an required a blood transfusion. He went another 5 months without blood, then had one recently. He has gone know 6 weeks without one. My son can not really talk so its sometime hard to know whats wrong, it hard to tell if his red bloods go down has he is still very active an doesn't go pale. All his other counts are excellent. I would like to know what sort of early symptoms to look for, an should we do the BMT. Or since all his other counts are fine there is know need for it. Also when getting bloods transfusion does it hurt. Sorry I know so many questions, its been a rough journey.
Reply With Quote
Old Fri Sep 2, 2011, 12:52 AM
mscrzy1 mscrzy1 is offline
Join Date: Jan 2011
Location: California
Posts: 103
Hi, I'm so sorry that your baby boy has had to struggle so early in life like he has, but I'm happy to hear that he has a brother who is a perfect match. Yay! As for your questions, to keep an eye on my hemoglobin, I've always checked the lines in my hands. With his fingers straight and his palm up, push his all fingers back just slightly so that you can easily see the lines in the palm of his hand. If the lines turn red quickly when you push the fingers back, then his hemoglobin is ok. If it takes a while for the lines to turn and the color is pink or maybe no change in color at all, he's low. You can also watch the color of his nail beds. They will be pale when he is low and when any pressure is applied to his fingertips, they will turn light pink or even white instead of immediately turning red. For all these examples, compare to your own to get a good idea of what normal would look like beforehand.

As for the blood transfusions, they don't hurt at all. If he doesn't have a port, the IV stick to get the transfusion can stink sometimes, but the actual transfusion itself doesn't hurt a bit. The only thing that can be bothersome during the transfusion is that I would get really cold. If the IV was in my hand, I would ask for a warmed towel to wrap my hand in. If the IV was in my arm or after I got the port, it was in my port, I always asked for a blanket to be warmed and thrown on me. The blood in the bag is kept pretty cold and as it goes into your veins, you start to get really cold. Other than that, nothing much else to report on that front. I'll be sending blessings your way for your sweet little boys.

36 yr. old, dx SAA in Jan 1996, treated with ATG in Mar. 1996, off cyclosporine Sept. 1996, last blood transfusion in Aug. 1997, slow decline in counts again November 2010, AA and current count decline thought to be caused by lupus, currently taking 400mg Plaquinil
Reply With Quote
Old Wed May 2, 2012, 04:18 PM
barbes99 barbes99 is offline
Join Date: Jan 2011
Location: australia
Posts: 2

Thank you for your reply. Anthony has been going great for the last year year just one blood transfusion. We started to feel like things were going our way. Then boom little man needed blood three weeks ago, his bloods a dropped so quickly he needed another transfusion. He had a bone marrow biopsy yesterday will find out in a week there plan of action. Either atgam or bmt from is sibling. Not sure which to to choose what does everyone think.
Reply With Quote

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
25 years after AA, now I've got AA and PNH squirrellypoo Tell Your Story 14 Fri Dec 14, 2018 10:52 AM
AA from Epilepsy Drugs? bchenaille AA 16 Wed Dec 28, 2011 07:20 AM
How Does AA Progress to MDS? Greg H AA 10 Fri Sep 9, 2011 06:00 AM
Newbie Story / "not typical" AA presentation Deanna16 Tell Your Story 4 Fri Feb 12, 2010 09:18 AM
My experience with AA Hawaii Bill Tell Your Story 5 Fri Jun 13, 2008 02:31 AM

All times are GMT -4. The time now is 06:00 AM.

Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2019, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright 2006-2019 Marrowforums.org