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Old Wed Dec 26, 2018, 01:52 PM
Marrowforums Marrowforums is offline
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One-day Patient and Family Forum in Los Angeles, California, February 2, 2019

A free one-day patient and family forum will be held in Beverly Hills, CA, part of greater Los Angeles, on Saturday, February 2, 2019. The forum will be hosted by the MDS Foundation. It is one of 11 patient and family forums scheduled for 2019.

Attendees will hear from leading MDS experts. Breakfast and lunch are included.

Topics to be covered:
  • Defining MDS
  • Treatment Options, Bone Marrow Transplants, and Clinical Trials
  • Patient & Caregiver Discussions
  • Quality of Life and Quick Tips for Patients and Caregivers
Presenters will include Dr. Casey L. O’Connell, University of Southern California.

When:
Saturday, February 2, 2019, from 9:30am to 2:00pm
Where:
Beverly Hills Marriott
Playa/Marina Conference Rooms
1150 South Beverly Drive, Beverly Hills, CA 90035 (Google map)
Registration:
Use the online registration form or contact Janice Butchko at 1-800-637-0839 x212 or by email.
For more information, see the event flyer or contact Janice Butchko.


If you plan to attend this patient and family forum, post in this thread to let other attendees know to look for you!

After the patient and family forum, let us know what you thought of the event.
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Old Tue Jan 29, 2019, 11:52 AM
Marrowforums Marrowforums is offline
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The meeting times have changed. The meeting will be one hour longer than first announced above.

New meeting times: 9:00am to 2:30pm.
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Old Tue Jan 29, 2019, 11:55 AM
Neil Cuadra Neil Cuadra is offline
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My wife Ruth and I will be at the meeting on Saturday.

If any other forum members will be attending, we look forward to meeting you there.
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Old Sun Feb 3, 2019, 01:42 PM
Neil Cuadra Neil Cuadra is offline
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The meeting was excellent.

Dr. O’Connell is an excellent speaker for an audience of patients and caregivers. She covered the basics of MDS, current treatments other than transplants, and the latest new and promising developments.

The topic of transplants was covered by Dr. Mojtaba Akhtari, also a good speaker for a lay audience.

Both physicians answered all of the questions posed by attendees. Patients also learned about living with MDS by talking to other patients.

The afternoon session focused on health tips and on the MDS Foundation's Building Blocks of Hope program, comprised of printed materials, online resources, and an iOS or Android app.
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