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  #1  
Old Sun Feb 3, 2013, 02:53 PM
Marrowforums Marrowforums is offline
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MDS Foundation to Hold Eleven MDS Patient and Family Forums in 2013

The Myelodysplastic Syndromes Foundation will hold 11 free one-day conferences for MDS patients and their families in 2013. Attendees at each conference will hear from leading MDS experts. Breakfast and lunch are included.

To sign up for any conference or get more information, phone the MDS Foundation at 1-800-MDS-0839 (1-800-637-0839, toll-free) or 609-298-1035 (outside the U.S.) or email Deborah Murray at dmurray@mds-foundation.org.


Conference locations and schedule

Click links for conference threads.
Gainesville, Florida - Saturday February 23, 2013
Speaker:
  • Dr. Christopher Cogle
    University of Florida & Shands Hospital
San Diego, California - Saturday March 2, 2013
Speakers:
  • Dr. Rafael Bejar and Dr. Peter Curtin
    Moores Cancer Center at the University of California, San Diego
Portland, Oregon - Saturday March 23, 2013
Speaker:
  • Dr. Gabrielle Meyers
    OHSU Knight Cancer Institute
Atlanta, Georgia - Saturday April 20, 2013
Speaker:
  • Dr. Amelia Langston
    Emory Winship Cancer Institute
Berlin, Germany - Saturday May 11, 2013
This MDS Patient & Family Forum is being held in conjunction with the The 12th International Symposium on Myelodysplastic Syndromes, which takes place May 8 to May 11 in Berlin.
Detroit, Michigan - Saturday June 15, 2013
Speaker:
  • Dr. Abhinav Deol
    Karmanos Cancer Institute at Wayne State University
Chicago, Illinois - Saturday July 13, 2013
Speaker:
  • Jamile Shammo, MD
    Rush University Medical Center
Philadelphia, Pennsylvania - Friday August 23, 2013
Speaker to be announced.
Long Island, New York - Saturday September 28, 2013
Speaker:
  • Steven L. Allen, MD
    Monter Cancer Center/NSLIJ Cancer Institute
Indianapolis, Indiana - Saturday October 12, 2013
Speaker:
  • Larry Cripe, MD
    Indiana University Simon Cancer Center
Buffalo, New York
Watch The MDS Foundation's Patient and Family Forums page for announcement of the date.
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  #2  
Old Sun Feb 3, 2013, 06:22 PM
Darice Darice is offline
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Location: Colorado Springs, CO
Posts: 91
Hmmmm . . . Berlin in May?

Jens would love to go to Germany (he is German) for his birthday . . . May 11. Wouldn't that be something if we were to wind up going to that one because none of the ones in the US are close enough? It's a crazy world sometimes.
__________________
hubby 73, dx NHL 2001, CNS involvement. SCT (auto) 5/08 [dx UTUC renal pelvis, 2010/surgeries/MMC], MANY recurrences, chemos, surgeries, rad. dx t-MDS 3/11: IPSS 1.5 (Int-2); MDA 11, RCMD trilineage, inc. Fe, ring sideroblasts, 7q del/mono 7 (51.5%), 46,XY,t(6,17)(p22;q25)[4]/45,XY,-7[4]/46,XY[12].
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Old Sat Apr 6, 2013, 03:21 PM
Marrowforums Marrowforums is offline
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Details have now been announced for the Atlanta meeting. See the news thread.
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Old Wed May 29, 2013, 11:55 PM
Marrowforums Marrowforums is offline
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The city and date for the Michigan conference have been announced:
Detroit, Michigan - Saturday June 15, 2013

See conference details.
The date for the Philadelphia conference has also been announced: Friday August 23, 2013
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  #5  
Old Thu Oct 10, 2013, 12:13 AM
Marrowforums Marrowforums is offline
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The MDS Foundation has added two free Patient and Family Forum meetings in October:
Rochester, New York - Saturday, October 19, 2013, 9:30am-2:00pm

Location:
James P. Wilmot Cancer Center
Strong Memorial Hospital (Google map)
601 Elmwood Ave
Rochester, NY ‎
Presenter
  • Dr. Jane Liesveld, Strong Memorial Hospital
Topics:
  • New Therapies and Patient Treatment Options
  • Patient Support Group Open Discussion
  • Quick Tips for Patient and Caregivers
  • The MDS Foundation’s Building Blocks of Hope

Indianapolis, Indiana - Saturday, October 26, 2013, 9:30am-2:00pm

Location:
JW Marriott Indianapolis (Google map)
10 South West Street
Indianapolis, IN
Presenter
  • Dr. Larry Cripe, Indiana University
Topics:
  • New Therapies and Patient Treatment Options
  • Patient Support Group Open Discussion
  • Quick Tips for Patient and Caregivers
  • The MDS Foundation’s Building Blocks of Hope
To sign up, see the contact information above.
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Old Fri Oct 11, 2013, 10:36 PM
Marrowforums Marrowforums is offline
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The MDS Foundation has added a free MDS Spouse Coping and Caring meeting in October:
Philadelphia, Pennsylvania area - Saturday, October 26, 2013, 1:30pm-3:30pm

Location:
The home of Rochelle Ostroff-Weinberg, spouse of the late Robert Weinberg
28 Greenhill Lane (Google map)
Wynnewood, PA
Discussion moderator
  • Rochelle Ostroff-Weinberg
Topics:
  • Tell your story; share your experience
  • Learn how others cope
  • Talk about your concerns
Registration is required by emailing Janice Butchko or phoning her at 1-800-637-0839.

Please register by Friday, October 18.
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