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MDS Myelodysplastic syndromes

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Old Thu Apr 25, 2019, 03:36 PM
Leigh Clark Leigh Clark is offline
AAMDSIF Patient Educator
 
Join Date: Jun 2007
Posts: 19
MDS Advisory Board

AAMDSIF is helping recruit MDS patients to participate in an upcoming MDS advisory board meeting. Eligible participants must be 18 years or older, affected by Low or Intermediate Risk MDS and receiving transfusions.

The meeting will take place on May 18th in Washington,DC. The purpose of the meeting is to gain direct patient & caregiver insight into the following areas:

Care and access to care of MDS
Preferences on MDS education, news, and resources
Feedback on a potential treatment for MDS

The advisory board will last approximately 3 hours.

Contact Desiree Ruiters for more information, 301-279-7202 x105 or ruiters@aamds.org.
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