Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > Bone Marrow Failure
Register FAQ Search Today's Posts Mark Forums Read

Bone Marrow Failure Causes, treatment approaches, terminology, related diseases

Reply
 
Thread Tools Search this Thread
  #1  
Old Sun Oct 28, 2018, 08:06 PM
Naive Naive is offline
Member
 
Join Date: Jul 2016
Location: Gold Coast, Queensland, Australia
Posts: 77
Lymphoma anyone?

I was wondering if anyone here has developed lymphoma.

Originally I was diagnosed with bone marrow failure of unknown cause, then MDS RAEB1, then back to bone marrow failure. Now I have CT changes of my chest that suggests Lymphoma. I’m currently having investigations to confirm the diagnosis.

I’m a bit confused.
Reply With Quote
  #2  
Old Sat Nov 3, 2018, 12:45 PM
Hopeful Hopeful is offline
Member
 
Join Date: Jan 2009
Location: California, USA
Posts: 766
Hi Naive,

I'm sorry to read of this turn in events! Although, I don't have lymphoma, it is a disease that I worry about. I hope the doctors can give you better, targeted treatment as a result of these tests.

How are you feeling otherwise?
__________________
55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
Reply With Quote
  #3  
Old Mon Nov 5, 2018, 07:19 PM
Naive Naive is offline
Member
 
Join Date: Jul 2016
Location: Gold Coast, Queensland, Australia
Posts: 77
Thanks Hopeful. I’ve seen the haematologist. As I have lung changes along with the enlarged lymph nodes, I am also going to see a respiratory physician. The haematologist has written to the respiratory doc and asked him to do lymph node biopsies when I’m having the bronchoscopy. I still have to wait on the PET scan to be done. I think there’s been some good news because they went back and reviewed a previous scan from 2 years ago and I had enlarged nodes back then too (makes you wonder why they missed it at the time) and the nodes have gotten larger but after two years you’d expect widespread involvement and besides a couple of spots in the spleen, two in the brain and two in my spine, it doesn’t seem to be a problem anywhere else.

As with most things medical, I’m powerless to change what is. I will wait patiently for all the investigations and deal with whatever they find when the time comes.
Reply With Quote
  #4  
Old Thu Dec 13, 2018, 06:48 PM
Naive Naive is offline
Member
 
Join Date: Jul 2016
Location: Gold Coast, Queensland, Australia
Posts: 77
I’ve had the lymph node biopsy and I’m waiting for full results. It’s very confusing, the histology scientist who was in the OR when I was having the biopsies said he “thought” it looked like sarcoidosis on initial exam but have to wait for histology to confirm it. Then I saw my Doctor on Monday and I was telling him how grateful I was that it looked like it was “only” sarcoidosis and then the Doctor said that the interim report suggests that it could be sarcoidosis and lymphoma together but I still have to wait for the full report. Another week of waiting.
Reply With Quote
  #5  
Old Sun Dec 16, 2018, 02:29 AM
Hopeful Hopeful is offline
Member
 
Join Date: Jan 2009
Location: California, USA
Posts: 766
Hi Naive,

I just wanted you to know that I am thinking about you. I hope you get some direction with the full report. Hang in there!
__________________
55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
Reply With Quote
  #6  
Old Sat Dec 22, 2018, 07:18 PM
Naive Naive is offline
Member
 
Join Date: Jul 2016
Location: Gold Coast, Queensland, Australia
Posts: 77
I thought I’d let you know the biopsies were definitely sarcoidosis and not lymphoma. Now I have to have brain and spinal cord MRI. Neuro ophthalmologist review. Heart assessment (ECG,echo, holter monitor). EMG. I suspect when I see the haematologist I will have a repeat bone marrow biopsy to look for sarcoidosis as well. After these tests we may proceed to PET scan. I have tested positive for skin, spleen and lymph node sarcoidosis with suspicion that it is very widespread due to heart arrhythmia, abnormal liver function tests, high urinary albumin, central vision loss, and the spots on the spine and brain. On the one hand it’s good news..on the other hand...do I really need yet another disease...
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
MDS Leukemia & lymphoma?? rondeb111 MDS 1 Tue Aug 30, 2011 11:53 PM
Hypocellular all 3 lines and have lymphoma - now what? HELP! kidsandliz Bone Marrow Failure 1 Thu Nov 4, 2010 12:51 AM
Did cyclosporine cause my lymphoma? gail anne Drugs and Drug Treatments 3 Mon Sep 24, 2007 12:36 AM
Dual diagnosis aplastic anemia & NHL lymphoma gail anne AA 1 Thu Sep 13, 2007 11:00 PM


All times are GMT -4. The time now is 04:58 AM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org