The
Aplastic Anemia & MDS International Foundation (AA&MDSIF) is holding
six one-day patient conferences in 2011.
The first of these conferences will be held Saturday, March 26 in Phoenix, Arizona. It's a multi-track conference for AA, MDS, and PNH patients and their families. (West-coast patients might also consider attending the one-day patient conference that will be held in San Francisco on Saturday, July 23, 2011.)
The conference will include parallel (simultaneous) sessions on topics related to AA, MDS, and PNH, as well as sessions to help you live with and cope with these diseases.
Conference attendance is free. Breakfast and lunch are included. Discounted hotel rates are available to those who want to stay overnight.
Conference Program
Come hear about the latest information about diagnosis, treatment (including transplants), and medical research from leading experts, including:
- Dr. Ruben Mesa, Mayo Clinic
- Dr. Joseph Mikhael, Mayo Clinic
- Dr. Pierre Noel, Mayo Clinic
- Dr. Charles J. Parker, University of Utah School of Medicine
- Dr. Philip Scheinberg, National Institutes of Health
- Dr. David Steensma, Dana-Farber Cancer Institute
Patients and family members will also be able to
- meet these medical experts face-to-face
- learn skills for managing life with a bone marrow failure disease: coping with illness and fatigue, nutrition and exercise, etc.
- have your questions answered
- learn how to be your own advocate for the best care
- get to know other patients and family members like yourselves
Special programs included:
- Standing Up for Your Health (lunchtime program)
- Veterans & Bone Marrow Failure Diseases: a discussion and workshop especially important to Vietnam veterans
- Survivors Celebration (concluding program)
Living with Aplastic Anemia, MDS or PNH
When:
Saturday, March 26, 2011, from 8:30am to 5:15pm
Check-in begins at 7:30am.
Where:
Embassy Suites Hotel Phoenix-Scottsdale (see Google map)
4415 E. Paradise Village Parkway S., Phoenix, AZ 85032
Hotel self-parking is free.
Discounted hotel rates are available if you make reservations by Thursday, March 3, 2011.
See "Conference Hotel & Directions" on the AA&MDSIF event page.
Registration:
Use the online registration form to register for the conference.
The registration deadline is March 17.
For more information see the AA&MDSIF event page.