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MDS Myelodysplastic syndromes

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  #1  
Old Mon Nov 28, 2011, 12:09 PM
slip up 2 slip up 2 is offline
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vitamin B 12

need some info on B-12, what is the normal range...and how does it affect MDS....and bone marrow....thanks

thank-you to all have gone before with trials
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  #2  
Old Mon Nov 28, 2011, 03:22 PM
Marlene Marlene is offline
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There are many posts which discuss B12 and other nutrients. You can search on B12 to find the posts. Most recent is this thread:

http://forums.marrowforums.org/showthread.php?t=2507

B12 is critical. Your B12 blood serum level should be at a minimum of 500. Blood serum testing of B12 is not the most reliable way to assess B12 deficiency. A low-normal B12 reading cannot rule out a B12 deficiency especially in the presence of blood or neurological symptoms.

B12, Folate, Copper, B6, Iron and zinc are needed for healthy blood production.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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  #3  
Old Thu Dec 1, 2011, 09:03 PM
slip up 2 slip up 2 is offline
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thanks Marlene....all will be tested next week...
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  #4  
Old Thu Dec 8, 2011, 02:27 PM
slip up 2 slip up 2 is offline
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Had the tests done B-12 is 354 and copper is 22.2 so guess we need to get the B-12 up....starting 8th set of Vidaza on Monday 2X red blood trans 2 weeks ago first trans in 5 months...thanks
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  #5  
Old Thu Dec 8, 2011, 03:25 PM
Marlene Marlene is offline
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B12 Oral supplementation is just as effective as shots. The best form of B12 is the Methyl-colbamin and is available over the counter. It's best taken on an empty stomach. 5000 mcg sounds like a lot but you only absorb, at most, 10%.

I like Jarrow's B12. There are other brands as well, just make sure it is the Methyl kind. This is more available to your body since it does not need to be converted in order for your body to use it.

Some find B12 energizing, other find it relaxes them.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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