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#1
Wed Apr 30, 2008, 12:20 AM
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Looking for someone who speaks Chinese and knows about AA
Dear Friends,
I am looking for someone who speaks Chinese and can help a young woman who is in a hospital in San Francisco having just been diagnosed with aplastic anemia. She and her family are having a very hard time understanding what the doctors are telling them. If you know the basics about AA and speak Chinese (or know someone who does) and are available to provide some support by phone or in-person for this woman, please post in this thread or send me a private message so I can put you in touch with her. Thanks, in advance, for any help you can offer. Ruth Cuadra
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Diagnosed AA 10/96, MDS/RA 6/98, MUD/BMT 10/6/98 
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#2
Wed Apr 30, 2008, 04:36 AM
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speaks chinese ? mandarin
Hi,
I work with someone who is Chinese, I think she speaks mandarin. She also used to be a doctor in China, so should be conversant with medical terminology. I won't see her again until next Tuesday, but if it's urgent I do have her telephone number and could ring her and ask her to contact you via email. Please let me know and I'll do what I can to help. Lynns husband is also Chinese origin and is currently working as a doctor because his English is quite good. Maybe Lynn could ask him to help too. Hope to hear from you soon. Chirley
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy. FISH reported normal cytogenetics but gene testing showed Xq 8.21 mutation Xq19.36 mutation Xq21.40. mutation 1p36. Mutation 15q11.2 deletion
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#3
Wed Apr 30, 2008, 04:41 PM
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I can help to explain AA with Chinese
I have educated myself enough after my 6 year old was diagnosed with Very Severe AA last October. I have explained AA to my in-laws in Chinese (mandarin) without any problem.
I can be reached by e-mail: jenliusa@yahoo.com or you can call me at (510)378-1335. Last edited by Jenny L : Wed Apr 30, 2008 at 05:42 PM.
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#4
Thu May 1, 2008, 11:29 AM
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Thank you so much for your replies!
Jenny, since you are in the U.S., it may be easier to arrange for the San Francisco family to contact you. I have given your number and email to the AA&MDSIF who is actually in contact with them.
Chirley, I so appreciate your offer and we may ask you for contact details if this family needs more help. Marrowforums members are the best! Ruth
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Diagnosed AA 10/96, MDS/RA 6/98, MUD/BMT 10/6/98
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#5
Thu May 1, 2008, 01:23 PM
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I am happy to help
Ruth, we live in San Francisco Bay area. They can contact me any time. My six year old Emily did her BMT in Lucile Packard Children's hospital at Stanford last November. UCSF Hospital in San Francisco also has very good doctors to treat AA patients.
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