Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > MDS
Register FAQ Search Today's Posts Mark Forums Read

MDS Myelodysplastic syndromes

Reply
 
Thread Tools Search this Thread
  #1  
Old Mon Aug 13, 2012, 06:25 PM
Al's Wife Al's Wife is offline
Member
 
Join Date: Jun 2010
Location: Jackson, Georgia USA
Posts: 205
Al admitted to hospital

Had the scare of my life yesterday. Al passed out and I couldn't get a response for a few minutes. He was on the floor and gagging and threw up. I called 911 and he was admitted to Emory. So far he has had two units of red blood which were at an all time low of hematocrit 20. The two units have only brought his hematocrit up to 26 so they may need to give him more. We will be here at least another night and when I know something I will post. He is better but was very weak. I did a terrible job of holding it together I'm afraid. I HATE MDS!
Till later,
__________________
Linda, Al's wife, 75; dx MDS 5/2010; Vidaza 6/2010; ARRY614 & Sapacitabine clinical trials at Emory, no results, stopped 12/2011. Had BMB at NIH on 6/5/12, blasts 10-15% so he's not eligible for trial there. :eek Promacta trial, Tampa, blasts 25-30% 8/17/12 AML, trying Dacogen now and praying.
Reply With Quote
  #2  
Old Mon Aug 13, 2012, 06:29 PM
PattiDean PattiDean is offline
Member
 
Join Date: Jul 2012
Location: Clearwater, FL
Posts: 171
Linda, I am so sorry to hear this!!

You are both in our thoughts and prayers!

Don't worry about keeping it together, I didn't do very well when Dean was in the hospital either. I think MDS wears us down both physically and emotionally.

Please keep us posted if you can.

Lots of love and hugs are being sent to you and Al.

God Bless!

Patti and Dean
__________________
Dean,age 76, dx MDS, RAEB-2, 17% blasts, June 2012 - May 2013 - Dacogen with Neupogen and transfusions as needed. End of May 2013 Dacogen stopped working. BMB July 2013 shows RAEB-2 and severe Myelofibrosis. Passed away September 30, 2013
Reply With Quote
  #3  
Old Mon Aug 13, 2012, 07:28 PM
milliken2 milliken2 is offline
Member
 
Join Date: Apr 2012
Location: Ellwood City, PA. U.S.A.
Posts: 163
Al Is In Our Prayers

Linda;
Al and you are both in our prayers. I am fully aware of where you are - and almost wish the hema/onc would admit Earl to the hospital. He had 2 units of PRBC's and one large bag of platelets on Friday - and when we had his blood draw this AM - his Hgb was already down to 6.3
If this ever happens to you again - turn Al on his left side so that there will be less chance of the emesis (vomit) getting into his lungs and causing more problems. Also - elevate his legs with a couple of bed pillows and warm compress to the forehead. Warm dialates the blood vessels and gets the blood to the brain faster. Of course, if he has a fever, you would want to use a cold compress for better results. but that is only if he has not fainted.
Needless to say, you are both in our thoughts and prayers.

(((HUGS)))
Beth
__________________
Beth - R.N., B.S.N and wife of recently diagnosed husband who has been classified at stage 4 MDS. and I can't help the one I love the most.

Last edited by milliken2 : Mon Aug 13, 2012 at 07:30 PM. Reason: misspelled word
Reply With Quote
  #4  
Old Mon Aug 13, 2012, 07:33 PM
Sally C Sally C is offline
Member
 
Join Date: Dec 2010
Location: Chesterfield, Va.
Posts: 470
Dear Linda,
All I can say is God Bless you both and you are in my prayers.
Lots of hugs and prayers,
Sally
Reply With Quote
  #5  
Old Tue Aug 14, 2012, 05:50 AM
Birgitta-A Birgitta-A is offline
Member
 
Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
MDS

Dear Linda,
We all hope that Al - who has been fighting so hard - will manage with supportive treatment! Good that he is in the hospital! Too bad that Promacta still not has been working - maybe the drug needs more time.
Kind regards
Birgitta-A
Reply With Quote
  #6  
Old Tue Aug 14, 2012, 06:21 AM
maria&lola maria&lola is offline
Member
 
Join Date: Jul 2012
Posts: 34
Sorry you're going through this! Hope Al is getting the best possible care and is feeling stronger soon. You're his rock I'm sure, but it's okay to be human...this MDS does a number physically and emotionally! Take care.
Reply With Quote
  #7  
Old Tue Aug 14, 2012, 10:27 AM
Anne Yeomans Anne Yeomans is offline
Member
 
Join Date: Dec 2011
Location: Lakeworth, Florida
Posts: 39
AL

Sorry to here about Al. You both are in my prayers. Yes this thing has a mind of its own. God Bless.

Anneg
Reply With Quote
  #8  
Old Tue Aug 14, 2012, 09:41 PM
wilmasdaughter wilmasdaughter is offline
Member
 
Join Date: Jun 2011
Location: IA, USA
Posts: 25
Prayers and thoughts

All my prayers are with you. It's difficult and everyone on this forum understands to some degree what you are going through.
__________________
Jil, dtr of Wilma age 90; dx May 2011; MDS refractory cytopenia IPSS Int 1; platelets 35, WBC 3.5 & RBC 3.06
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Which hospital in the states is recognised as the number one centre for BMT? TASHMAC Transplants 2 Sun May 3, 2015 12:59 PM
Who can I get to Stay with my sister near the Hospital? alicat4790 MDS 3 Sat Oct 4, 2008 04:00 PM
After hospital treatment paulaespada AA 4 Fri Aug 15, 2008 06:13 PM


All times are GMT -4. The time now is 11:13 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org