Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > News and Events
Register FAQ Search Today's Posts Mark Forums Read

News and Events News related to bone marrow failure diseases

Reply
 
Thread Tools Search this Thread
  #1  
Old Wed Jan 1, 2020, 06:34 PM
Marrowforums Marrowforums is offline
Marrowforums.org
 
Join Date: Jul 2006
Posts: 908
AAMDSIF to Hold Four Patient Conferences in 2020

The Aplastic Anemia & MDS International Foundation (AAMDSIF) will hold three one-day conferences for bone marrow failure disease patients and their families in 2020, and one 3-day national conference.

Conference attendance will be free. Those who want to stay overnight can take advantage of discounted hotel rates. Plan to attend the patient conference closest to you.


2020 Patient and Family Conferences (click a link for conference details)
  1. Atlanta, Georgia - Saturday, April 18, 2020 -- date since changed; see below

  2. Seattle, Washington - Saturday, June 20, 2020 -- canceled; see below

  3. Bethesda, Maryland - Friday, July 17 through Sunday July 19, 2020 (National Conference)

  4. Cleveland, Ohio - Saturday, October 3, 2020

Agenda

Each conference will include parallel (simultaneous) sessions on bone marrow failure diseases.
  • AA (aplastic anemia) and PRCA (pure red cell aplasia)
  • MDS (myelodysplastic syndromes), CMML (chronic myelomonocytic leukemia), and MPNs (myeloproliferative neoplasms)
  • PNH (paroxysmal nocturnal hemoglobinuria)
  • AML (acute myeloid leukemia)
There will also be sessions on bone marrow transplants and general wellness. These sessions will help you learn about the diseases, learn to live with and cope with them, and take charge of your own health.

At each conference patients and family members will be able to
  • meet medical experts face-to-face
  • hear about the latest treatments and medical research
  • learn skills for managing life with a bone marrow failure disease
  • have your questions answered
  • learn how to be your own advocate for the best care
  • get to know other patients and family members like yourselves
  • learn how the AA&MDSIF can help you
  • attend a Friday night social before the day of a Saturday conference

Click the links above, once they are available, for details about each conference. To be notified of news or changes, subscribe to this forum thread or the individual conference threads. You can also find information on the AA&MDSIF Patient Conferences page.
Reply With Quote
  #2  
Old Wed Apr 1, 2020, 03:34 PM
Marrowforums Marrowforums is offline
Marrowforums.org
 
Join Date: Jul 2006
Posts: 908
Update: Atlanta Patient and Family Conference

Saturday, April 25, 2020, 10am to 4pm Eastern time

The Atlanta conference has gone virtual. Everyone is invited to attend.

Click the REGISTER button to register. You'll receive a registration confirmation. Prior to the conference, you'll receive links and phone numbers to join the sessions of your choice.
Reply With Quote
  #3  
Old Wed Apr 1, 2020, 03:35 PM
Marrowforums Marrowforums is offline
Marrowforums.org
 
Join Date: Jul 2006
Posts: 908
Update: Seattle Patient and Family Conference

Saturday, June 20, 2020, 8:30am to 4:30pm

The status of the Seattle conference has not yet been decided.
Reply With Quote
  #4  
Old Fri Apr 17, 2020, 04:32 PM
Marrowforums Marrowforums is offline
Marrowforums.org
 
Join Date: Jul 2006
Posts: 908
Update: Seattle Patient and Family Conference

Originally scheduled for: Saturday, June 20, 2020, 8:30am to 4:30pm

Due to the COVID-19 pandemic, this conference has been canceled at the request of the Fred Hutchinson Cancer Center.
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
AA&MDSIF to Hold Six Patient Conferences in 2017 Marrowforums News and Events 0 Wed Dec 14, 2016 08:17 PM
AA&MDSIF to Hold Six One-day Patient Conferences in 2015 Marrowforums News and Events 1 Fri Mar 6, 2015 01:58 PM
AA&MDSIF to Hold Six One-day Patient Conferences in 2014 Marrowforums News and Events 1 Mon Jul 14, 2014 08:55 PM
AA&MDSIF to Hold Seven One-day Patient Conferences in 2012 Marrowforums News and Events 0 Sun Jan 29, 2012 02:55 PM
AA&MDSIF to Hold Six One-day Patient Conferences in 2011 Marrowforums News and Events 3 Sun Feb 20, 2011 05:51 PM


All times are GMT -4. The time now is 06:07 AM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2020, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright 2006-2020 Marrowforums.org