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#1
Wed Feb 3, 2016, 11:06 AM
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Awaiting 2nd Round of ATG
Hi again!!
Ok so, since my last appointment (26/01/16) I have found out that I only have Aplastic Anaemia and no signs of MDS, which is good! Doc has opted for a 2nd round of ATG, I was due in hospital on Monday but the YPU doesnt have any beds ugh Currently sporting a PICC Line, the procedure went well but I bled a lot (damn platelets x.x) Its a little bit of a nuisance and is making me concious of every twinge of pain I get in case something is wrong with it >.> Should hopefully be admitted today maybe, even if it is late in the evening. really hope so anyway
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Diagnosed AA in 2009;treated rabbit ATG+Cyclosporin the same year, taken off Cyclosporin in 2011; Relapsed AA in 2015 and had horse ATG as of 08/02/16. I have copy neutral loss of heterozygosity in chromosome 6p, affecting the HLA region. 
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#3
Sun Feb 7, 2016, 12:11 PM
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It's both funny and sad at the same time to be able to say, "yay it''s only Aplastic Anemia", but it really is a celebration.
Did they use horse the first time, and will they use horse again, or will they use rabbit? I thought there was some study about a repeat treatment and which was better. Good luck to you!
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Edith, mom to Eric, dx 2/11 at age 15 with SAA, began ATG/CsA 3/11, switched to Tacrolimis 8/11, off all meds 9/11 and is now considered to have bone marrow failure not otherwise specified.
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#4
Mon Feb 8, 2016, 04:19 AM
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Quote:
I had rabbit the first time round so they are trying horse this time
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Diagnosed AA in 2009;treated rabbit ATG+Cyclosporin the same year, taken off Cyclosporin in 2011; Relapsed AA in 2015 and had horse ATG as of 08/02/16. I have copy neutral loss of heterozygosity in chromosome 6p, affecting the HLA region.
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