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Living with Illness Coping with disease, getting help, dealing with family, staying optimistic, quality of life, hospice care

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  #1  
Old Wed Nov 23, 2011, 05:52 PM
cheri cheri is offline
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Join Date: Nov 2010
Location: Tuckahoe New Jersey
Posts: 243
Happy Thanksgiving!

I am grateful to be here to celebrate another Thanksgiving, and quite thankful for the friends I have found here on Marrowforums!

Wishing you all safe travels and a wonderful holiday!
Cheri
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Cheri Age 54; dx Oct 2009 AML, induction chemo only;dx MDS July 2010,- PRBC transfusion dependent; Results BMB 8/4/11--- 6-8% blasts; Danazol 100 mg 3xday; quit Exjade/ GI distress; platelets holding 40's; Fluctuation in blasts in blood--Neupogen 3-4xweek; off Revlimid again! Procrit weekly
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  #2  
Old Wed Nov 23, 2011, 06:10 PM
Greg H Greg H is offline
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Join Date: Sep 2010
Location: North Carolina
Posts: 660
Happy Thanksgiving from NC!

Hey Cheri!

I was just thinking it might be nice to put up a Thanksgiving greeting -- and wouldn't you know, you'd beat me to it!

I hope you have a truly great one.

And I hope all you BMFWs (Bone Marrow Failure Warriors) have a wonderful holiday, complete with family, friends, turkey, tofurkey, or whomever and whatever you chose for your celebration.

Personally, I expect to use the outrageously pleasant weather here in NC to clean up the garden, rake a few leaves, and use those to start a new compost pile -- and to be grateful my ANC count is high enough to engage in such sport.

Happy Thanksgiving to you all!

Greg
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Greg, 59, dx MDS RCMD Int-1 03/10, 8+ & Dup1(q21q31). NIH Campath 11/2010. Non-responder. Tiny telomeres. TERT mutation. Danazol at NIH 12/11. TX independent 7/12. Pancreatitis 4/15. 15% blasts 4/16. DX RAEB-2. Beginning Vidaza to prep for MUD STC. Check out my blog at www.greghankins.com
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  #3  
Old Wed Nov 23, 2011, 06:13 PM
cheri cheri is offline
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Location: Tuckahoe New Jersey
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Cheri Age 54; dx Oct 2009 AML, induction chemo only;dx MDS July 2010,- PRBC transfusion dependent; Results BMB 8/4/11--- 6-8% blasts; Danazol 100 mg 3xday; quit Exjade/ GI distress; platelets holding 40's; Fluctuation in blasts in blood--Neupogen 3-4xweek; off Revlimid again! Procrit weekly
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  #4  
Old Wed Nov 23, 2011, 07:14 PM
kgtuck kgtuck is offline
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Join Date: Mar 2011
Location: Sylva & recently Waynesville, North Carolina USA
Posts: 47
Wink Best wishes

"Back at you! And, like you, Greg, I'm enjoying this unusually warm weather in western NC. My husband and I have learned so much this year from your website! Also, the help from Birgitta and Neil, and others who are :continuing to do research! I'm also thankful for the drug "Dacogen" that continues to work for me!
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66 yr female;diag 6/09; MDS, unspecified, normal cytogenetics: blasts 10%; successful Dacogen;every 4th wk.; as of Aug.'12 changing to every 5th wk., stable at Hgb 12-14/platelets 200-300/wbc 2.-3.
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  #5  
Old Wed Nov 23, 2011, 07:21 PM
triumphe64 triumphe64 is offline
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Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
Remember - Cranberry sauce is red. Eat a lot of it. It can't hurt.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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  #6  
Old Wed Nov 23, 2011, 07:45 PM
donna j. donna j. is offline
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Join Date: Sep 2011
Location: long island, new york
Posts: 110
dr. said I could have a glass of wine. It'll be red! Happy Thanksgiving to all my new friends.

Donna
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f68 MDS; abmt 1/12. ABO mismatch 11 mos. (70) transf. Ferr 3-5k. 8 phlebot. AGVHD to CGVHD. skin,eyes. lungs as of 10/13. muscle weakness &osteo long term steroids.photopheresis 2x wk as of 3-15.pred 20 eod,acyclovir, mepron, voriconazole, pantropazole, lisinopril, montelukast, anoro, azithromycin.
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  #7  
Old Wed Nov 23, 2011, 10:16 PM
mausmish mausmish is offline
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Join Date: Mar 2010
Location: Maryland
Posts: 453
Happy Thanksgiving everyone! Last Thanksgiving I was in the hospital getting conditioning chemo for my BMT. One week from today will be my first rebirthday! I am very thankful to be here.
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
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  #8  
Old Thu Nov 24, 2011, 09:36 AM
squirrellypoo squirrellypoo is offline
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Join Date: Nov 2008
Location: London, UK
Posts: 458
Happy Thanksgiving! I'm doing an expat feast at the weekend since we don't get the day off work here.

So I celebrated in my own way with a quick 5km run this morning instead! Thanksgiving 2008 I was too ill to barely walk anywhere, and Thanksgiving 2009 wasn't much better with my daily antifungal IVs, so I make sure I'm thankful for every healthy second I've got these days.
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding! I've run 5 marathons now!! (PB 3:30!)
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  #9  
Old Thu Nov 24, 2011, 10:37 AM
Dick S Dick S is offline
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Join Date: Jan 2008
Location: Florida
Posts: 189
Happy Thanksgiving to one and all my fellow Bone Marrow Failure survivors. We're still here aren't we?
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Dick S, diagnosed Feb. 2008 with MDS. Last BMB April 2016. New diagnosis is CMML stage 1.
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  #10  
Old Wed Nov 30, 2011, 05:15 PM
Robi1Knobi Robi1Knobi is offline
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Join Date: Mar 2007
Location: Austin, Texas USA
Posts: 98
Thankful to be alive

Happy Thanksgiving & Holidays to all my marrow friends ). I'm happy every day I wake up and feel good enough to do anything, either go to work, or have a pj day on my day off! Best of luck to all of you & here's hoping 2012 will be a healthier one for all of us!
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Linda, 47 yo, married, mother of a teen, moderate AA w/ TERC mutation (2007 NIH), Pulmonary Fibrosis 2010, was on Danazol study (Aug 2011-2013 & restarted 9/14/15), last transfusion May 2011. On Promacta now. Needing a double lung and stem cell transplant.
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