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#1
Sun Feb 10, 2013, 11:09 PM
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Houston TX
Comunity of hope meetings in Houston for AA,MDS, and PNH pts. These meetings are so helpful! You can find more info on www.aamds.org
We live in the north Houston area. My husband has been dx PNH 10/12 and AA 2/13. Anyone looking to connect or have any questions please feel free to contact us!
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium. 10/10 MUD 10/10/13 Now no PNH or AA. Mixed Chimerisim 
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#2
Sat Feb 16, 2013, 03:07 AM
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Be sure to attend this event in San Antonio on March 10.
http://www.aamds.org/community-news/...-antonio-texas
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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