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#1
Sat Feb 25, 2012, 11:48 AM
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MDS awareness . . . A Gifted Man
Anyone watch "A Gifted Man" last night? One of the cases was a man who got diagnosed with MDS . . . secondary to lymphoma, intermediate 2. I assume the story line is in conjunction with AA/MDS awareness week coming up and that it will continue next week, but I don't know. Really not much information in the episode . . . the patient went into the clinic with an infection in his arm and was in the hospital with an MDS diagnosis by the end of the day. Did mention probable transformation to AML. No mention of BMB . . . guess things just have to move faster on TV
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hubby 73, dx NHL 2001, CNS involvement. SCT (auto) 5/08 [dx UTUC renal pelvis, 2010/surgeries/MMC], MANY recurrences, chemos, surgeries, rad. dx t-MDS 3/11: IPSS 1.5 (Int-2); MDA 11, RCMD trilineage, inc. Fe, ring sideroblasts, 7q del/mono 7 (51.5%), 46,XY,t(6,17)(p22;q25)[4]/45,XY,-7[4]/46,XY[12]. 
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#2
Sat Feb 25, 2012, 03:35 PM
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I did view that TV episode, but MDS being what it is to me - I nodded off and missed the ending! Oh well
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Ric: Low-risk MDS (blasts <4%); 4 cycles Revlimid no positive response; PRBC transfusion dependent; so far, 392'units' over 8 3/4 years; BMB #4 (15/04/01) shows evolution to AML (blasts 20-30%  ) 47,XY,del(5) (q22q35),+21[24][cp24]/46,XY(1).
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#3
Sun Feb 26, 2012, 12:18 PM
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I watched it. It kinda trailed off at the end and I assume since he was young, he was going to go forth with a BMT. I look at it this way, the more exposure we get, the better.
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Dick S, diagnosed Feb. 2008 with MDS. Last BMB April 2016. New diagnosis is CMML stage 1.
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