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Old Mon Jul 30, 2012, 02:47 PM
evansmom evansmom is offline
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Join Date: Nov 2007
Location: Ontario, Canada
Posts: 203
ITP four years post BMT for AA

Hi friends,

My son is doing well, thank goodness. I am, however, concerned about a friend we met in transplant four years ago.

He was also 10 at that time, and had initially developed acute liver disease and over two days went from a healthy child to a jaundiced and sickly one. A short time later, he was diagnosed with sAA. He had a perfect match sibling BMT from his sister and had been in perfect health (autoimmune hepatitis cured with BMT also) until this past April when, strangely and upsettingly, 4 years post BMT, he has now been diagnosed with ITP.

He is still 100% his sister's donor cells. Short burst high dose prednisone didn't budge the platelets from 10. A single dose of IVIG gave a temporary decent result of platelets rising to 60 but dropping right down again over a few weeks or so. He's had a second IVIG but I've recommended to his mom to ask the doctors to screen him for any viruses that are running rampant that could be the reason for the platelet problem, otherwise they should consider starting Promacta.

Has anyone else heard of this happening this far out of transplant? Any suggestions I could pass along?

Thanks,
Nicole
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Nicole, mom to Evan (20); diagnosed SAA November 2007, hATG mid-November 2007, no response after 6 months, unrelated 9/10 BMT June 2008, no GVH, health completely restored thanks to our beloved donor Bryan from Tennessee.

www.caringbridge.org/visit/evanmacneil
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