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Transplants Bone marrow and stem cell transplantation

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Old Mon May 13, 2013, 09:18 AM
AngieA AngieA is offline
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Join Date: Sep 2012
Location: Decatur GA
Posts: 15
After your transplant, did you...l

One of the things I've not seen discussed here is mental confusion.

Doc says it's normal...but sometimes what they say and what someone says that's actually lived through it differ somewhat

Bill is Day 33 and the mental confusion is still pretty significant. Did you or your loved one go through this and if it did how long did it last?

Also, have you had to have blood transfusions after your numbers started recovering from the transplant. How about white cell counts? Did they go up and down?

He's started with a rash now...mild right now. Hoping it stays that way. He's decreased eating but still eating a sufficient amount I think..His sodium levels are low inspite of eating and drinking powerade/ V8, well salted foods and nuts and limiting water...Lower extrementy swelling is also a real problem for him. Any advise?

I very much appreciate you input
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Angie, wife to Bill age 65; Diagnosed MDS May 2012; Post mini MUDD almost 2 years. Has some GVHD in mouth, otherwise doing well.
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Old Mon May 13, 2013, 10:42 AM
sstewart09 sstewart09 is offline
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Join Date: Feb 2013
Posts: 65
My husband didn't have the confusion, but I've talked to many caregivers whose patient did. I think it's pretty common. As far as swelling, the PT gave my husband compression socks they usually use for burn victims. It worked great. After a few days, she'd get him a smaller pair and repeated until his legs were back to normal. Joe had at least three RBC transfusions after transplant. WBC were all over the place. Seem to be a little more consistent now on day 75.
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Samantha, wife of Joe age 34; diagnosed vsaa 2012; MUD BMT February 2013
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Old Mon May 13, 2013, 07:11 PM
evansmom evansmom is offline
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Join Date: Nov 2007
Location: Ontario, Canada
Posts: 203
This could be a reaction to cyclosporin or tacrolimus. If your husband is on either one, I'd inquire as to his current med level in his blood as it may be high (toxic). Everyone has a different tolerance to cyclosporin. A dose or blood level that may be fine for one, may be intolerant for another.

Reducing the dose somewhat or switching over to Celcept (MMF) may remove these side effects.
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Nicole, mom to Evan (20); diagnosed SAA November 2007, hATG mid-November 2007, no response after 6 months, unrelated 9/10 BMT June 2008, no GVH, health completely restored thanks to our beloved donor Bryan from Tennessee.

www.caringbridge.org/visit/evanmacneil
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  #4  
Old Sun May 19, 2013, 11:57 AM
Cam Cam is offline
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Join Date: Oct 2012
Location: Jacksonville, Florida
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I did not have confusion but I had some memory lapses. My wife and family referred to it as chemo brain.
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Cam, BMT 12/6/12 for MDS, diagnosed August 2012 beat it in December 2012
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