Home         Forums  

Go Back   Marrowforums > Community > Tell Your Story
Register FAQ Search Today's Posts Mark Forums Read

Tell Your Story Say hello or share your experiences

Reply
 
Thread Tools Search this Thread
  #1  
Old Mon Oct 5, 2015, 12:23 AM
yobuddy yobuddy is offline
Member
 
Join Date: Sep 2015
Location: Portland, OR
Posts: 1
new member

My husband was diagnosed with MDS and is now in treatment and included in a clinical trial using a drug called SGI110. So far this has caused him few problems for which we are very grateful. However I fear we are skating on thin ice as I cannot see into the future and fear what is coming. Quite honestly I am terrified. A bone marrow transplant may be an option and a donor search is underway. I truly hope this will help him.
Reply With Quote
  #2  
Old Mon Oct 5, 2015, 01:21 AM
Neil Cuadra Neil Cuadra is offline
Owner
 
Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,553
yobuddy,

I'm sorry about your husband's diagnosis and how much it's worrying you. Please know that he's getting top notch care because he's in a clinical trial.

You're at the first step of a journey that many users of these forums have taken. That includs patients in clinical trials, patients who completed clinical trials, patients facing transplants, patients undergoing transplants, and patients who have had transplants.

Good luck with the donor search, in case that presents a good option for your husband.

I've found that the best way to fight the fear is to learn as much about MDS as you can, so that you'll understand what it is, what can be done about it, and so you and your husband can work with his doctors to determine his treatments.

The Aplastic Anemia & MDS International Foundation can support you too, so contact them if you haven't already. You'll also find information about MDS, written for laypeople like us, at the MDS Foundation website.
Reply With Quote
  #3  
Old Mon Oct 5, 2015, 10:58 AM
bailie bailie is offline
Member
 
Join Date: Dec 2013
Location: McMinnville,OR
Posts: 825
There are two live webinars, one today at 2:30 EDT (MDS Research Updates 2015) and one tomorrow at 2:00 EDT (MDS: Low and High Risk Diagnosis and Treatment).

https://www.pathlms.com/aamdsif

This is excellent current information.
__________________
age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
New Member Welcome Marrowforums Tell Your Story 185 Mon Apr 4, 2022 10:53 AM
New Member Profile: Evan MacNeil Marrowforums Site Announcements 0 Fri Nov 18, 2011 11:34 AM
New Member Profile: Alyse Booth Marrowforums Site Announcements 3 Wed Jun 1, 2011 06:37 PM
New Member Profile: Kirby Stone Marrowforums Site Announcements 0 Tue Jul 28, 2009 07:57 PM
New Member Profile: Birgitta Alexius Marrowforums Site Announcements 0 Sun May 10, 2009 03:39 PM


All times are GMT -4. The time now is 04:48 AM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org