Home         Forums  

Go Back   Marrowforums > Community > Tell Your Story
Register FAQ Search Today's Posts Mark Forums Read

Tell Your Story Say hello or share your experiences

Reply
 
Thread Tools Search this Thread
  #1  
Old Thu Jul 7, 2016, 07:40 AM
Sarah Roman Sarah Roman is offline
Member
 
Join Date: Jul 2016
Posts: 27
Hi new question?

Hi everyone so today I ent to see a natural healer! She saud I have the virus herpes in my back which could be stopping my marrow bone from producing the blood I need I have to be honest dont believe in this much but was pretty much under pressure to go, so apparently she killed the virus today and I have to go again on Sunday. Any thoughts any one?
Reply With Quote
  #2  
Old Thu Jul 7, 2016, 02:37 PM
triumphe64 triumphe64 is offline
Member
 
Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
I hope it didn't cost much.
__________________
Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
Reply With Quote
  #3  
Old Thu Jul 7, 2016, 04:22 PM
Sarah Roman Sarah Roman is offline
Member
 
Join Date: Jul 2016
Posts: 27
Cheap

Hi Triuphm,
No it was only 20euros. I take it you dont believe, I dont think I do either not with this diagnoses thought I would ask. Feeling nervous back to hospital tomorrow so maybe things might have changed my body doesnt feel like it but my head does cant wait to feel strong again. I am going to ask some question tomorrow any paticular questions you think are nessacery because its hard for me as he only speaks Spanish so need to be on the ball with my questions. Many Thanks for taking time to reply x
Reply With Quote
  #4  
Old Sun Jul 10, 2016, 10:40 PM
Cheryl C Cheryl C is offline
Member
 
Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 843
Hi Sarah - By the herpes virus did the natural healer mean shingles? How did she "kill the virus"?
__________________
Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
Reply With Quote
  #5  
Old Mon Jul 11, 2016, 06:44 AM
Sarah Roman Sarah Roman is offline
Member
 
Join Date: Jul 2016
Posts: 27
virus

Hi Cheryl

Well she rubbed my back for about 10 minutes altogether and said that it was dead. I went again yesterday and she rubbed my back agian and said its not so warm and inflammed. To be honest with this diagnosis I am not sure I believe but its not going to do any harm. The lady didnt say as they are Spanish she just said herpes.
Sarah x
Reply With Quote
  #6  
Old Wed Jul 13, 2016, 03:49 AM
Cheryl C Cheryl C is offline
Member
 
Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 843
Interesting! and you're right, the treatment can't hurt you.
__________________
Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
Reply With Quote
  #7  
Old Mon Sep 12, 2016, 11:59 AM
White-Stone White-Stone is offline
Member
 
Join Date: Sep 2016
Location: Trenton, FL
Posts: 25
Quote:
Originally Posted by Sarah Roman View Post
Hi Cheryl

Well she rubbed my back for about 10 minutes altogether . . . .
Sarah x
Hello Sarah, Not certain how much that was in US $, but it might have been worth it for a back rub.

Hope you get your diagnoses settled and that you get better, soon!

Kind regards,
White Stone
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
how do i post a question for all MDS groups? sundco Site Comments 3 Sat Mar 31, 2018 11:16 AM
MDS/AML va disability question Piff MDS 5 Thu May 28, 2015 11:06 PM
Bone Marrow Results Question MikeE07 MDS 2 Mon Sep 8, 2014 03:09 PM
Transplant question marmab AA 12 Thu Jun 5, 2014 09:52 AM
neuprogen question Paula W. Questions and Answers 6 Wed Aug 31, 2011 08:49 AM


All times are GMT -4. The time now is 06:34 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org