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MDS Myelodysplastic syndromes

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  #1  
Old Wed Feb 24, 2016, 05:39 PM
Bossywife Bossywife is offline
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Question Intermittent Fevers

My husband has been getting intermittent fevers that last only a short time and then go away.

Is this normal with low WBC and low platelets?

Should he see a doctor or just report during our next appointment. ugh.
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  #2  
Old Thu Feb 25, 2016, 08:01 AM
Juan Juan is offline
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Hello Bossywife,

I guess it depends on how high and intermittent are those fevers...
Anyway, my personal advise is: call the doctor if you can and ask him/her about it... you will never regret asking a doctor just in case.

Hope your husband feels ok and those fevers go away.
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  #3  
Old Thu Feb 25, 2016, 09:08 AM
PaulS PaulS is offline
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Hi BW - I agree with Juan - anything unusual like that is worth a call to the doctor - could be an infection or medication related or something the doctor can help with or worry about - better to be too cautious I think...
Paul
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Old Thu Feb 25, 2016, 11:24 PM
maggiemag maggiemag is offline
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Hello BW. It all depends on what the numbers are. When I have had an ANC (absolute neutrophil count) under 1.0, AND I had a fever of 100.4 or higher, I was told to go right away to the ER for a neutropenic fever. Otherwise, I would just make sure my physician was aware of a persistent fever over 100.8 if my ANC was normal.
Mags
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  #5  
Old Thu Mar 3, 2016, 04:11 PM
bkdaniels bkdaniels is offline
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You shoud always go by this general rule...

Quote:
Originally Posted by maggiemag View Post
Hello BW. It all depends on what the numbers are. When I have had an ANC (absolute neutrophil count) under 1.0, AND I had a fever of 100.4 or higher, I was told to go right away to the ER for a neutropenic fever. Otherwise, I would just make sure my physician was aware of a persistent fever over 100.8 if my ANC was normal.
Mags
marriemag is right on! Your husband should get in the habit of checking his temperature twice a day. Generally, you don't want a single temperature of 101.0 F (38.0 C) or a temperature of more than 100.4 F (38.0 C) for more than one hour.

Fever's must be taken seriously in patient's with neutropenia, an ANC count below 0.500. When a normal person gets an infection, we're used to seeing swelling and other signs of our bodies fighting an infection. But, people with neutropenia don't have enough neutrophils and white blood cells to form an attack. So, by the time an infection is suspected, the infection has spread and difficult to treat. And contrary to popular belief, the most common cause of death in patients with MDS is NOT Leukemia. But, infection. The most common sites of infection is the skin, catheter insertion sites, oral cavities, sinuses, lung, and abdomen. So, when you see your husband reach these temperatures, get him to the ER right away so that antibiotic therapy can be administered.

Don't wait for his Doctor to call back. You call a doctor's office and subject to get a voicemail. A wise man once said, when it comes to acting on fevers in the neutropenic: "It's better to make the wrong move and be embarrassed, than to make no move at all and be embalmed. (Honestly, I am the wise man ) But, hopefully, you get my drift.

Hope this answers your question!!

Works Cited
Elizabeth Engle and Maike Haehle, Febrile Neutropenia In Myelodysplastic Syndromes. 2014
http://www.mdsbeacon.com/news/2014/0...tic-syndromes/
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  #6  
Old Sat Mar 5, 2016, 05:51 AM
Cheryl C Cheryl C is offline
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My protocol from my specialist is to go to the hospital if I have a fever over 38 deg. I have had fevers over that a couple of times and haven't gone but then again I'm only 40 min from hospital and 10 min from my GP medical centre which also has after hours service.
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  #7  
Old Wed Mar 9, 2016, 05:40 PM
kyis kyis is offline
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If I'm over 99 for more than a couple of hours I grab the keys, but I'm normally a pretty low guy in the 97's usually and sometime high 96. I've been give antibiotics a few times and never used them as my fever just went back down. Probably nerves.
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Male 56, MDS 2008, pre SCT Hypocellular 5-30%, Normal Cytogenetics. WBC 500, anc 45, Blasts 15%, Platelets 45, HGB 7, RBCC 1.71, HCT 20.5, MCV 120. Became Transfusion dependent 3/2016. 5 cycles VIdaza started 3/14/16 which reduced Blast counts. . Marrow Transplant 9/1/16, Hereditary MDS/AML.
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  #8  
Old Fri Mar 11, 2016, 01:03 PM
Bossywife Bossywife is offline
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How do I figure out his ANC?
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  #9  
Old Fri Mar 11, 2016, 02:59 PM
Bossywife Bossywife is offline
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found it.
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