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Clinical Trials Considering or participating in research studies

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  #1  
Old Thu Oct 9, 2014, 10:45 PM
Fuller Fuller is offline
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Join Date: Oct 2014
Location: Mesa AZ
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Videza and LDE225

I am exploring getting into a trial. Does anyone have experience with the above? I am 6 years into the MDS journey, and 3 weeks ago it moved to full blown AML. 52% blood blasts, 8% marrow blasts. I have decided not to do the transplant journey. I am 66 and it's all about quality of life for me, not necessarily quantity.
Thanks for any input. Fuller
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Old Fri Oct 10, 2014, 12:54 AM
bailie bailie is offline
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Keep in mind that quality and quantity are possible.
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age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
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