NORD to Hold Six PNH Patient and Family Meetings in 2013
The National Organization for Rare Disorders will hold 6 free one-day meetings for PNH patients and their families in 2013. Attendees at each meeting will hear from and talk to leading PNH experts, gain a better understanding of PNH, get help coping with the effects of their illness, meet other patients, and share personal experiences.
Meetings will take place from 8:30 or 9:00am to 3:00pm. Breakfast and lunch are included.
To RSVP for any meeting, email Ms. Susan Olivo at NORD or phone her at 203-744-0100, ext. 232.
If you plan to attend one of these meetings, post in this thread to let other attendees know to look for you!
After the meeting, let us know what you thought of the event.
Meeting locations and schedule
Raleigh, North Carolina - Saturday May 4, 2013, 8:30am - 3:00pmSee also the NORD PNH Regional Meetings page.Speaker:Portland, Oregon - Saturday June 8, 2013, 9:00am - 3:00pm
NORD, the National Organization for Rare Disorders, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
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