Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > AA
Register FAQ Search Today's Posts Mark Forums Read

AA Aplastic anemia

Reply
 
Thread Tools Search this Thread
  #1  
Old Fri Apr 29, 2016, 02:00 AM
Livinginablender Livinginablender is offline
Member
 
Join Date: Apr 2016
Location: Oregon
Posts: 1
Newbie needing guidance

Just Dx with Aplastic and Megaloblastic and don't want conventional treatment looking for others who go the functional medicine route.
Reply With Quote
  #2  
Old Fri Apr 29, 2016, 10:02 AM
bailie bailie is offline
Member
 
Join Date: Dec 2013
Location: McMinnville,OR
Posts: 825
Welcome to the forum. What is the " functional medicine route"?
__________________
age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
Reply With Quote
  #3  
Old Fri Apr 29, 2016, 12:32 PM
Marlene Marlene is offline
Member
 
Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
I don't recall anyone on this forum who used functional medicine as a sole treatment plan for aplastic anemia/megaloblastic anemia. We used aspects of it post treatment to help heal.

Most have a conventional hematologist and work with alternative practitioner at the same time.
__________________
Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
Reply With Quote
  #4  
Old Fri Apr 29, 2016, 09:49 PM
triumphe64 triumphe64 is offline
Member
 
Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
Good luck. This is a serious disease.

Contact www.AAMDS.org and talk to the patient educator about your plan.
__________________
Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Immuno- Suppressive Therapy, First Timer. A.A. newbie. Darija Drugs and Drug Treatments 7 Thu Oct 13, 2016 05:46 PM
Maine, Newbie w/MDS - Aquired Refractory Anemia MrsWard2002 MDS 1 Thu Jun 30, 2011 02:35 PM
A newbie - low platelets lindy Tell Your Story 7 Mon Nov 29, 2010 12:30 AM
Transfusion questions from newbie GaryV Transfusions and Iron Overload 3 Sat Oct 2, 2010 05:45 AM
Another newbie with MDS Jayceechic Tell Your Story 7 Fri Aug 20, 2010 10:05 AM


All times are GMT -4. The time now is 07:11 AM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org