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MDS Myelodysplastic syndromes

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  #1  
Old Sat May 19, 2012, 01:32 PM
sttery sttery is offline
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Hypocellular mds

Hi, Trying over and over to get more information on the above. I was diagnosed 3 years ago. Put on Cyclosporin, and my counts have been normal for over 2 yrs. In fact they back to where they were before mds. Is there anyone out there who has had success with Cyclosporin and did it last. Why is it so hard to get information on the above????
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Old Sun May 20, 2012, 03:32 PM
Neil Cuadra Neil Cuadra is offline
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sttery,

If you use the forum search feature you'll find over 40 threads discussing the experiences of patients with hypocellular MDS, including some that also discuss cyclosporine. Remember that hypocellular MDS is less common than hypercellular MDS, and that hypocellular MDS is harder to diagnose, so there are fewer patient stories to be shared.

Those who have experience or knowledge relevant to sttery's situation are encouraged to comment in her Hypocellular MDS thread in the MDS forum.
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