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MDS Myelodysplastic syndromes

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  #1  
Old Thu Aug 21, 2008, 07:14 AM
knstone knstone is offline
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Join Date: Aug 2006
Location: Cincinnati, OH
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Joy Henry succumbed to MDS/CMML

Dear Friends,
Joy Henry died on Aug 7, 2008. She fought MDS and then CMML for many years. She always appreciated all your information and encouragement.

Her family and friends thank all of you.
Posted by Kirby Stone for Matt Henry
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  #2  
Old Thu Aug 21, 2008, 11:18 AM
Alison Alison is offline
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Location: Nelspruit, South Africa
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Hi There

My heart goes out to Joy's family & friends. I too am in the process of losing my Dad. After 16 months of uphill battle culminating in one cycle of chemo in-patient and the inability to find a donor match in a very weakened state he has been placed in terminal care. His condition is deteriorating by the day and his Oncologist doubts whether he'll make the week. We are shattered.

I wish to thank Neill & Ruth for this amazing site and wish each and every MDS/Leukemia sufferer the chance to live.

Love to you all
Alison
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Alison, daughter of Rod aged 61; Dx May 2007; was on Neupogen and Eprex Aug - Dec '07; Vidaza recommended 6 cycles starting Jan '08, only 5 cycles completed. Chemotherapy commenced: July '08 - Feb - '09. Cytarabine & Daunarubicin. Transfusion dependent.
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  #3  
Old Thu Aug 21, 2008, 03:05 PM
Ruth Cuadra Ruth Cuadra is offline
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To the Henry Family,

We are very sorry to hear about Joy's death and hope that your memories of her in better, healthier times are a comfort to you now. We're glad to know that Marrowforums played a useful role in helping all of you deal with MDS and CMML and the problems that go with it.

Kirby, please pass our sympathies to Joy's family.

Sincerely,
Ruth
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Diagnosed AA 10/96, MDS/RA 6/98, MUD/BMT 10/6/98
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  #4  
Old Thu Aug 21, 2008, 03:20 PM
Ruth Cuadra Ruth Cuadra is offline
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Alison,

I'm very sorry to hear that your Dad is declining so rapidly. I hope you have the time, as others have talked about, to be with your Dad, hear his stories, and support him.

Keep in touch when you can. And, thanks for your kind words about Marrowforums.

Regards,
Ruth
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Diagnosed AA 10/96, MDS/RA 6/98, MUD/BMT 10/6/98
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  #5  
Old Mon Aug 25, 2008, 01:24 AM
Alison Alison is offline
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Location: Nelspruit, South Africa
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Hi Ruth,

I'm not going to start a new thread but just to let you know that my Dad passed away on Friday, 22/08. We used the last few weeks to say all we needed to say and he went peacefully. Our prayers were answered.

Much health & happiness to you,
Alison
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Alison, daughter of Rod aged 61; Dx May 2007; was on Neupogen and Eprex Aug - Dec '07; Vidaza recommended 6 cycles starting Jan '08, only 5 cycles completed. Chemotherapy commenced: July '08 - Feb - '09. Cytarabine & Daunarubicin. Transfusion dependent.
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  #6  
Old Mon Aug 25, 2008, 12:09 PM
Ruth Cuadra Ruth Cuadra is offline
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Dear Alison,

My condolences to you and your family on the loss of your father. What a lucky man he was to have your support.

Sincerely,
Ruth
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Diagnosed AA 10/96, MDS/RA 6/98, MUD/BMT 10/6/98
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  #7  
Old Mon Aug 25, 2008, 09:51 PM
Zoe's Life Zoe's Life is offline
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Location: Logan, Ohio
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Alison,

I am saddened to hear of your loss.

Zoe
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Diagnosed MDS-RA 5q- at age 47 (November 2006). Aranesp 2/07, good response.
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  #8  
Old Thu Sep 11, 2008, 05:28 AM
paulaespada paulaespada is offline
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Location: Azores, Portugal
Posts: 91
Sorry to know

Quote:
Originally Posted by knstone View Post
Dear Friends,
Joy Henry died on Aug 7, 2008. She fought MDS and then CMML for many years. She always appreciated all your information and encouragement.

Her family and friends thank all of you.
Posted by Kirby Stone for Matt Henry
I'm sorry to hear what happened Joy Henry.
Now my family and prayers are with family members and loved ones.
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Paula Espada - wife of Jorge Espada, diagnosed AA in June 2008, ATG, cyclosporine until Janury 2010, relapse and 2nd ATG June 2010
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  #9  
Old Mon Sep 15, 2008, 12:04 PM
Tom M Tom M is offline
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Joy and Rob will be in my prayers, as will their families.

I hope they heard these words as they made the transition from this life to the next, "Welcome! Welcome, my good and faithful servants. Now, enter into the joy of your Master's house."
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Tom, age 56, diagnosed with MDS RAEB Oct of 2006. Previously treated w/ vidaza, unsuccessfully. Revlimid successful 1 year. Progressed to AML 4/08 w/ 20% blasts, now in remission. BMT to take place 10/08.
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