Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > MDS
Register FAQ Search Today's Posts Mark Forums Read

MDS Myelodysplastic syndromes

Reply
 
Thread Tools Search this Thread
  #1  
Old Fri Dec 15, 2017, 02:19 AM
ritu ritu is offline
Member
 
Join Date: Oct 2017
Location: New Delhi India
Posts: 26
Purtier Placenta

Hi

Has anyone heard of Purtier Placenta I have come across someone and he says that taking it for 3 months can help in overcoming MDS to a great extent. Have anyone tried or heard about the same. My mother is suffering from MDS.
Reply With Quote
  #2  
Old Mon Dec 18, 2017, 11:56 PM
ritu ritu is offline
Member
 
Join Date: Oct 2017
Location: New Delhi India
Posts: 26
Need Advice

Quote:
Originally Posted by ritu View Post
Hi

Has anyone heard of Purtier Placenta I have come across someone and he says that taking it for 3 months can help in overcoming MDS to a great extent. Have anyone tried or heard about the same. My mother is suffering from MDS.
Hi

Can someone please advice if they have any experience.

Regards
Ritu
Reply With Quote
  #3  
Old Tue Dec 19, 2017, 12:12 AM
maggiemag maggiemag is offline
Member
 
Join Date: Sep 2012
Location: Cincinnati, OH - United States
Posts: 92
Hi Ritu,

I've not heard of it before. I googled it and one site says that it is "the Rolls Royce" of supplements. Other sites referred to purtier placenta as a scam. I hate to see you taken advantage of, and who knows how much it actually did for your friend's hematological status. Truthfully, to my knowledge, the only cure for MDS is a stem cell transplant. Vitamins, supplements, and just good healthy eating can improve well being, but will not take away the disease. There are medications that have proven to add years to survival, like Vidaza and Decitabine, and there are numerous others in trials right now. We just have to hang on, utilize proven treatments for now, and try to maintain a positive attitude too! A tall order I know when your loved one is affected.

All my best,
Mags
__________________
Margaret, age 68, dx MDS 5 q- 5/09- now RCMD; also MGUS. TP53 and TET2 mutations
Reply With Quote
  #4  
Old Wed Dec 20, 2017, 11:31 PM
ritu ritu is offline
Member
 
Join Date: Oct 2017
Location: New Delhi India
Posts: 26
Purtier Placenta

Thanks for your reply. I am looking for all posible treatment available possible. I have also heard lot about immunotherapy, any idea about the same.
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump


All times are GMT -4. The time now is 04:30 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org