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MDS Myelodysplastic syndromes

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  #1  
Old Tue Jan 10, 2012, 01:46 AM
annmonster annmonster is offline
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Is surgery possible for MDS patients ??

Hi Everyone...

I found out today that I have a torn rotator cuff, and may need surgery to fix it .... ( oh great ! ).

I require transfusions every two weeks... would body be able to heal normally or are there big precautions involved ??
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Old Tue Jan 10, 2012, 02:07 AM
Chirley Chirley is offline
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Good luck, hope you get a better response than I did.

I have a torn carilage in my hip that requires surgery. My hematologist wants it repaired but the orthopaedic surgeon won't do it. He says I may not recover well and he doesn't want to take the risk.

I think a lot will depend on your age and other medical problems etc.

Joints can be painful can't they?

Regards
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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Old Tue Jan 10, 2012, 11:06 AM
mausmish mausmish is offline
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I'm post transplant and have a broken finger. The orthopedic surgeon did not want to operate because of increased infection risk. He said to wait until I finished chemo and my white counts were solidly normal for several months.
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
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Old Fri Jan 13, 2012, 09:32 PM
annmonster annmonster is offline
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Thanks everyone for sharing your experiences and advice !! Always helps to 'talk' to folks who have 'been there, done that'
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  #5  
Old Sat Jan 14, 2012, 09:23 PM
usaf1125 usaf1125 is offline
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Thumbs up Leo

No problem, Iv'e had 8 surgeries since 2003 when I was diagnosed with MDS. I have had 280 units of blood, no trouble, don't worry
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82 yr. old male. Diagnosed in 2003. Started Blood infusion 1/5/2004, average of 2 units every 2 weeks. Inject Procrit weekly 40,000 ML. I have had 344 units of PRC. E Mail leojean@comcast.net
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