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#1
Tue Sep 27, 2011, 01:49 PM
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Dad's count low today...
his hgb dropped to 4.7....not sure what his other counts are....said he doesnt want anymore of the dacogen....he's at the hospital now getting a transfusion. His hematologist only ordered 2 pints of blood....that will not last or sustain him very long. I guess the hospital will give him more if they deem necessary.
He's so tired of all the treatment.....doesn't look the same...he is a shadow of what he used to be....  It's so hard watching your parents deteriorate.
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Dad (83) DX w/MDS-RARS on 6/10/06.Prev treated w/Vidaza & Thalomid w/o success. Treated w/Decitabine w/some imprv discont after no resp. TX dep as of Aug'10 (evry 2-3 wks). Curr tkg Revlimid since Feb'11. Exjade since Apr'11. Recd lwr dsg decitabine on 6/6/11 in comb w/rev. 
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#3
Tue Sep 27, 2011, 10:40 PM
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bebop
glad to see you are still around here...you have such valuable insight through the whole process. Hope things are getting easier....
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Cheri Age 54; dx Oct 2009 AML, induction chemo only;dx MDS July 2010,- PRBC transfusion dependent; Results BMB 8/4/11--- 6-8% blasts; Danazol 100 mg 3xday; quit Exjade/ GI distress; platelets holding 40's; Fluctuation in blasts in blood--Neupogen 3-4xweek; off Revlimid again! Procrit weekly
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#5
Wed Sep 28, 2011, 10:23 PM
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Low Count
Hi Sophia68;
What a emotional roller coaster. Our thoughts and prayers are with you both. Stay strong for your dad.
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Wife 63, June 2010 MDS (refr anemia - excess blasts type-2) PLTs 11,000/μl with giant forms 2 TF/wk. Hgb kept at 80g/l with 1TF per 2 weeks. 9% blasts 2 cytogenic abnormalities del(5)(q22q35) + inv(20)(p11.23q11.21) 3 cycles Vidaza no effect. June 2011 to AML WBC to 67 blasts and Aur rods in blood.
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#6
Wed Oct 5, 2011, 01:30 PM
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Quote:
Thanks bebop...
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Dad (83) DX w/MDS-RARS on 6/10/06.Prev treated w/Vidaza & Thalomid w/o success. Treated w/Decitabine w/some imprv discont after no resp. TX dep as of Aug'10 (evry 2-3 wks). Curr tkg Revlimid since Feb'11. Exjade since Apr'11. Recd lwr dsg decitabine on 6/6/11 in comb w/rev.
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#7
Wed Oct 5, 2011, 01:30 PM
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Quote:
__________________
Dad (83) DX w/MDS-RARS on 6/10/06.Prev treated w/Vidaza & Thalomid w/o success. Treated w/Decitabine w/some imprv discont after no resp. TX dep as of Aug'10 (evry 2-3 wks). Curr tkg Revlimid since Feb'11. Exjade since Apr'11. Recd lwr dsg decitabine on 6/6/11 in comb w/rev.
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#8
Wed Oct 5, 2011, 01:35 PM
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Dad received 3 pints of blood in the hospital on 9/27/11 (they gave him an additional pint) and received chelation treatment with Deferoxamine.
His counts on 10/3/11: WBC - 1.9 RBC - 3.38 HGB - 10.2 PLT - 10 His platelets are very low.
__________________
Dad (83) DX w/MDS-RARS on 6/10/06.Prev treated w/Vidaza & Thalomid w/o success. Treated w/Decitabine w/some imprv discont after no resp. TX dep as of Aug'10 (evry 2-3 wks). Curr tkg Revlimid since Feb'11. Exjade since Apr'11. Recd lwr dsg decitabine on 6/6/11 in comb w/rev.
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#9
Sat Oct 8, 2011, 10:06 PM
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Still waiting on second option
My father-in laws blood count was in the nines last week, back down to 7.2 this week so he received two pints. Still waiting on second option to come back, not getting any treatment at present time. Oxygen levels are good. Blood pressure is fine but still having dizzy spells. He fell again last week so doctors are starting him on some therapy to help his leg strength. The doctor thinks they are missing something. His MDs score is low and he has the Pure red cell aplasia but his count will drop 2 points all at once. He is hanging in there.
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