Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > MDS
Register FAQ Search Today's Posts Mark Forums Read

MDS Myelodysplastic syndromes

Reply
 
Thread Tools Search this Thread
  #1  
Old Tue Jan 3, 2012, 12:42 PM
Marrowforums Marrowforums is offline
Marrowforums.org
 
Join Date: Jul 2006
Posts: 919
MDS Patient Krissy Kobata in Glamour Magazine Article

Name:  2010-Walk-Los-Angeles-Krissy.jpg
Views: 6
Size:  32.6 KB Name:  1201-Team-Krissy.jpg
Views: 6
Size:  48.1 KB

Patients and family members who attended previous Hope, Steps & A Cure fundraising walks may remember Krissy Kobata and her team of supporters.

Krissy has been looking for a matched bone marrow donor since she was diagnosed with MDS in 2008. Unfortunately, Japanese-Caucasian and other people of mixed Asian and Caucasian ancestry are underrepresented in the national bone marrow registry. She has no match among the 9.5 million people in the registry, only 3% of which are of mixed race.

Krissy has been a relentless recruiter for the bone marrow registry, organizing drives that have added thousands of volunteers to the ranks. This has the potential to find her a match but has also improved the chances for countless other patients who are searching for donors, including a few matches known to have been made as a result of her bone marrow registry drives. Asians for Miracle Marrow Matches (A3M) makes similar efforts to recruit donors among the Asian community.

This month, in the January 2012 issue of Glamour Magazine, a 4-page article features Krissy's story and a pitch for Glamour readers to sign up for the bone marrow registry. Most Glamour readers are American women so based on the percentage of Asian-Caucasians among American women they estimate that 37,200 Glamour readers have ancestry that makes them potential matches for Krissy. The publicity from this article should further spread the message that more donors are needed, especially among the minority and mixed-race communities. Congratulations, thank you, and good luck to Krissy!

Name:  1201-Glamour-issue.jpg
Views: 6
Size:  18.8 KB Name:  1201-Glamour-article.jpg
Views: 6
Size:  46.1 KB
Reply With Quote
  #2  
Old Fri Dec 1, 2017, 10:57 AM
Neil Cuadra Neil Cuadra is offline
Owner
 
Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,553
Krissy Kobata is receiving a haplo transplant from her brother today, after completing her conditioning.

We wish her the best of luck and a speedy and full recovery.
Reply With Quote
  #3  
Old Sat Jan 27, 2018, 07:26 PM
Neil Cuadra Neil Cuadra is offline
Owner
 
Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,553
Krissy Kobata reports that she's home and that her recovery is going well.
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
MDS Foundation to Hold Eleven MDS Patient and Family Forums in 2013 Marrowforums News and Events 5 Fri Oct 11, 2013 10:36 PM
The lower risk MDS patient at risk of rapid progression akita MDS 0 Mon Dec 27, 2010 04:28 AM
Time Magazine on MDS, Vidaza, and Epigenetics Marrowforums News and Events 6 Sun Apr 18, 2010 05:03 AM
MDS Patient Forum in Atlanta, GA, Nov 13-14 knstone News and Events 0 Tue Oct 7, 2008 02:29 PM


All times are GMT -4. The time now is 07:18 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org