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MDS Myelodysplastic syndromes

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  #1  
Old Wed Dec 10, 2008, 09:43 PM
LynnI LynnI is offline
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Join Date: Jun 2008
Location: Ontario, Canada
Posts: 99
My early Christmas present

As of this week, my HGB is now 147, WBC and PLTs continue to be normal.
I am also over 22 wks tx independant and going strong.
The Valproic Acid certainly has been an excellent treatment for me and we are hopeful that it continues to be longterm.
I would like to thank everyone for your suppose, best wishes, compassion and knowledge especially when I was so scared and new to this jounery of fighting MDS. My heart goes out to those that have this damned disease worse than I do and to those who have lost their loved ones.

Happy and safe Holidays
Lynn
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  #2  
Old Thu Dec 11, 2008, 05:24 AM
Birgitta-A Birgitta-A is offline
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Location: Stockholm, Sweden
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Valproic acid

Hi Lynn,
How wonderful that you have such a positive response when you take a histone deacetylase inhibitor like Valproic acid ! It gives hope to us becase the new histone deacetylase inhibitors will hopefully be more effective and not give fatigue in so many patients as Valproic acid.
Peaceful Christmas!
Birgitta-A
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  #3  
Old Sat Dec 13, 2008, 03:01 PM
Ruth Cuadra Ruth Cuadra is offline
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Join Date: Jul 2006
Location: Los Angeles, California
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Dear Lynn,

You can be our poster girl for Valproic Acid. This is great news. Happy Holidays!

Regards,
Ruth
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Diagnosed AA 10/96, MDS/RA 6/98, MUD/BMT 10/6/98
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