Home         Forums  

Go Back   Marrowforums > Treatments > Transplants
Reload this Page Day 104 Update
Register FAQ Search Today's Posts Mark Forums Read

Transplants Bone marrow and stem cell transplantation

Reply
 
Thread Tools Search this Thread
  #1  
Old Thu Dec 24, 2015, 06:48 AM
PaulS PaulS is offline
Member
  
Join Date: Sep 2014
Location: New York
Posts: 247
Day 104 Update
Hi all -

i got my 90 day BMB results - donor 99+% - no disease or cytogenetic abnormalities - everyone pretty happy.

My platelets and Hgb remain problematic and I needed transfusions of both yesterday. WBC and ANC normal - Dr. thinks the GVHD may be consuming platelets and it otherwise may just take a long time for me for whatever reasons -

Retuxan seems to be working and my GVHD has improved markedly - going from Grade 3 to Grade 1 and fading - their tapering my prednisone, which I'm very happy about.

All in all feeling pretty good - and very grateful for my donor, health care team, family and friends - also thankful for all the support and great advice I've received from this forum.

Merry Christmas everyone!!

Paul
__________________
Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
Reply With Quote
  #2  
Old Thu Dec 24, 2015, 03:21 PM
Neil Cuadra Neil Cuadra is offline
Owner
  
Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,556
A great way to end the year, Paul!

It's tricky tapering prednisone at just the right pace. I hope a slow and steady decrease will go well, and help your counts rise.
Reply With Quote
  #3  
Old Fri Dec 25, 2015, 11:20 PM
Cheryl C Cheryl C is offline
Member
  
Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 843
Excellent news Paul!
__________________
Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
Reply With Quote
  #4  
Old Sat Dec 26, 2015, 11:43 PM
traceyn11 traceyn11 is offline
Member
  
Join Date: Apr 2015
Location: Irvine, CA
Posts: 142
Fantastic news Paul! Glad you are feeling good!

Tracey
__________________
Tracey, mom & wife,age 58, dx MDS RAEB-2 4/15, normal cytogenetics, Update: SCT cancelled. Blasts at 67%. New dx AML.
Reply With Quote
Reply

« Previous Thread | Next Thread »

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Day 82 update PaulS Transplants 16 Wed Dec 9, 2015 01:32 AM
update - day 27 PaulS Transplants 19 Mon Nov 23, 2015 09:51 PM
Day +483 status update DanL Transplants 9 Sun Aug 16, 2015 09:32 PM
I survived transplant at day +11. rar MDS 10 Thu Aug 28, 2014 05:42 PM
AAMAC Patient Education Day in Montreal, October 19, 2013 Marrowforums Canada 0 Wed Sep 18, 2013 08:40 PM


All times are GMT -4. The time now is 12:19 AM.

Marrowforums - Archive - Privacy Policy - Top - Contact

Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org