Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > MDS
Register FAQ Search Today's Posts Mark Forums Read

MDS Myelodysplastic syndromes

Reply
 
Thread Tools Search this Thread
  #1  
Old Sun Jun 7, 2009, 12:30 PM
npmadsen npmadsen is offline
Member
 
Join Date: Feb 2009
Posts: 3
I think Dad is failing

Dad is 94 and has been transfusion dependant for about 2 years now
He has gotten so weak the last week, he could hardly move without terrible pain in his back on Thrusday and with SOB with movement.
I brought him to the hospital in the am.
His wbc 600, hgb 7 , and plts 34,000
He had just been transfused 3 weeks before, his transfusions usually last 5 to 6 weeks.
They transfused him 2 units, his hgb went to 10.6, but a day later down to 8.9, and plts down to 30
The pain is still present with movement but less severe and he is able to get around with the walker. We are giving him percocet
He is sleeping much more did not get up till 9am , he is usually up and down all night.
His gums also are bleeding today, has quite a bit when he got up this am.
He is so frail now and weak.
We are going to try and get his hgb checked at home, we will transfuse when he drops to about 7 as they feel the pain is worse by the low hgb
I am upset and trying not to let Dad see it, as he does not understand what is happening. I am just trying to reassure him.
What should expect in the next few days?
Thanks
eileen
Reply With Quote
  #2  
Old Mon Jun 8, 2009, 02:05 AM
Chirley Chirley is offline
Member
 
Join Date: Oct 2007
Location: Logan City Australia
Posts: 1,100
I don't know how your Dad copes with a low Hb but 7 seems very low and it must be very hard for him to function with any degree of comfort.

I hope things improve for your Dad. It's very hard watching someone else you love, suffer from an illness. In a way, it's worse than having the disease yourself.

Good luck.

Chirley
__________________
Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Acute Gvhd My Mom's Story tamara669 Tell Your Story 26 Sun Feb 7, 2016 02:08 AM
Dad with AML no longer responding to Vidaza, looking for alternatives. LJacobs Tell Your Story 0 Thu Feb 28, 2013 01:49 AM
I need info to help my dad... Sarah.P MDS 4 Wed Oct 17, 2012 03:17 PM
Dad diagnosed with MDS (RAEB-1); no treatment as of now S001 MDS 20 Wed Aug 25, 2010 09:44 AM
My Dad and MDS Marixyz MDS 19 Fri Jun 5, 2009 08:45 PM


All times are GMT -4. The time now is 04:06 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org