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#1
Wed Dec 14, 2011, 11:57 PM
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Diagnosis of MDS
I am trying to reach Bob McFarlane. The email address posted in one of his threads is not working.. We are just starting the VA claims process and would appreciate any assistance/information available that would help my husband receive a favorable decision on his VA claim.
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#2
Thu Dec 15, 2011, 12:30 AM
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I've let Bob know that you want to get in touch with him.
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#3
Thu Dec 15, 2011, 11:35 AM
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I have MDS and get my treatment from West Palm Beach VA hospital. Of course I was already enrolled and a patient before they discovered my MDS, but they did find it. So I may not be of much help about claims.
My experience has been, my primary is an okay guy for general things. My Onc/Hema Doc is very good, sharp and seems to know what is going on with me and what treatment path we should be following. I have the slow progressive type and the waiting and patience is killing me. Hope I've been of some help. Stay around and ask a lot of questions, someone here probably has an answer. Good luck on your journey
__________________
Dick S, diagnosed Feb. 2008 with MDS. Last BMB April 2016. New diagnosis is CMML stage 1.
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#4
Thu Dec 15, 2011, 12:01 PM
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In Bob's latest post he said many people were having trouble getting to him. He also gave his cell number to use.
__________________
Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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#5
Thu Dec 15, 2011, 12:36 PM
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Click here for Bob Macfarlane's post with his contact information.
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