Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > AA
Register FAQ Search Today's Posts Mark Forums Read

AA Aplastic anemia

Reply
 
Thread Tools Search this Thread
  #1  
Old Tue Jun 25, 2013, 01:01 AM
Connie Connie is offline
Member
 
Join Date: Aug 2006
Location: Kalama, WA
Posts: 1,322
Long remission

Hello. I check in the posts every once in a while. I just wanted to give a little hope for those newly diagnosed. I was diagnosed, with SAA in 2000. I was treated with ATG in 2000 for a short remission. Then retreated with ALG in 2001. I am in remission and doing well. I know it is scary at first. Been there. But there is hope for a long remission.
__________________
Connie, diagnosed with AA in Nov. of 2000. Had ATG treatment with short remission. Then had ALG treatment in 2001. Am in remission as of 10-2007.
Reply With Quote
  #2  
Old Tue Jun 25, 2013, 03:25 AM
NLJabbari NLJabbari is offline
Member
 
Join Date: Aug 2006
Location: San Jose, California
Posts: 139
Hi Connie, Congratulations on your remission! It's always encouraging to hear from those who are doing well!

Q: How are your counts now and what line responded first? Platelets, Hgb.?? Were you weaned very slowly the second time around?

Thanks
__________________
06/2004 my son was dx with SAA at the age of 10. No sibling BM match. He underwent ATG (H)/CsA. Relapsed 05/12 & dx'ed w/PNH. Currently in wait/see mode for Solaris as he is asymptomatic...
Reply With Quote
  #3  
Old Wed Jun 26, 2013, 01:36 AM
Connie Connie is offline
Member
 
Join Date: Aug 2006
Location: Kalama, WA
Posts: 1,322
remissio

Hello again. Seems my platelets responded first. But it was a long slow climb for all lines. And yes, I was weaned very slowly. All of my counts are within normal range now. Although some go on the low normal range every now and then. Gets me worried, but then they jump back up again.
__________________
Connie, diagnosed with AA in Nov. of 2000. Had ATG treatment with short remission. Then had ALG treatment in 2001. Am in remission as of 10-2007.
Reply With Quote
  #4  
Old Wed Jun 26, 2013, 06:05 PM
curlygirl curlygirl is offline
Member
 
Join Date: Jun 2013
Posts: 151
Thank you, Connie! My son just got his Port-o-Cath in and starts his ATG soon. It is encouraging to hear. I'm glad you're doing well!
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Vidaza Survey - How Long? Sue&Dave MDS 31 Sat Aug 29, 2020 07:48 PM
Long Term Side Effects of Vidaza Jill2008 Drugs and Drug Treatments 6 Sun Jun 1, 2014 09:35 PM
Do you ever really have TOTAL REMISSION of SAA?? Ellen McDonough AA 1 Sun Dec 8, 2013 01:54 AM
How Long Till Liver GVHD Permanently Goes Into Remission? Flamingo Jim Transplants 4 Wed May 23, 2012 12:12 PM
Has anyone relpased after 5yrs in remission? JudyS57 AA 5 Sat Jun 18, 2011 01:29 PM


All times are GMT -4. The time now is 08:18 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org