Home Forums |
|
News and Events News related to bone marrow failure diseases |
|
Thread Tools | Search this Thread |
#1
|
|||
|
|||
One-day Patient Conference in Bethesda, MD, March 24, 2012
A free one-day patient conference will be held in Bethesda, MD on Saturday, March 24, 2012. The conference, hosted by the Aplastic Anemia & MDS International Foundation (AA&MDSIF), is one of seven one-day patient conferences in 2012.
This will be a multi-track conference for AA, MDS, and PNH patients and their families. Those who live on the East Coast should plan to attend this conference or the July conference in Newark, NJ. The conference will include parallel (simultaneous) sessions on AA, MDS, and PNH, sessions to help you live with and cope with these diseases, and professionally-facilitated support sessions with your peers. Conference attendance is free. Breakfast and lunch are included. Discounted hotel rates are available to those who want to stay overnight. Conference Program Come hear about the latest information about diagnosis, treatment (including transplants), and medical research from leading experts, including:
When: Saturday, March 24, 2012, from 8:30am to 5:00pmWhere: Bethesda Marriott (Google map)Registration: Use the online registration form to register for the conference. |
#2
|
|||
|
|||
Are you planning to attend?
I'm not sure yet if I'll be able to attend this conference but wondered if any of you will be there?
__________________
Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com |
#3
|
|||
|
|||
My wife and I have already registered. In fact, our doctor is supposed to speak at this event too. Whether we go or not will depend upon many things. Life is pretty much week to week right now. This coming Thursday we are to find out what my wife's treatment options are, and I guess depending on that and when she starts treatment, and so forth will determine is she is even capable of being among other people at the time.
__________________
Caregiver to wife, 42 years old. Diagnosed MDS-RAEB II with auer rods and trisomy on chromosome 8. Currently under going induction chemo. |
Thread Tools | Search this Thread |
|
|
Similar Threads | ||||
Thread | Thread Starter | Forum | Replies | Last Post |
One-day Patient Conference in Rockville, Maryland, March 24, 2018 | Marrowforums | News and Events | 0 | Thu Dec 28, 2017 10:01 PM |
One-day Patient Conference in Rockville, Maryland, March 19, 2016 | Marrowforums | News and Events | 0 | Wed Jan 20, 2016 11:15 PM |
One-day Patient Conference in Baltimore Maryland, March 28, 2015 | Marrowforums | News and Events | 0 | Wed Feb 4, 2015 02:08 AM |
One-day Patient Conference in Los Angeles, CA, April 21, 2012 | Marrowforums | News and Events | 2 | Mon Apr 23, 2012 09:09 PM |
One-day Patient Conference in Newark, NJ, July 28, 2012 | Marrowforums | News and Events | 0 | Sun Jan 29, 2012 02:57 PM |