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Drugs and Drug Treatments ATG, Cyclosporine, Revlimid, Vidaza, Dacogen, ...

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Old Sun May 3, 2009, 06:30 AM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
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For Helen about Telintra

Hi Helen,
I have read reports from members that have participated in Telintra trials. You could look at the archive. Here is a report from a study where 28 of 45 -62 %- of the patients had a hematological response:
http://www.ncbi.nlm.nih.gov/pubmed/1...ubmed_RVDocSum

Kind regards
Birgitta-A
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Old Sun May 3, 2009, 08:48 PM
helen c. helen c. is offline
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Join Date: Feb 2009
Location: FL.
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hank you so much for answering me. we went to moffitt cancer center friday and it was suggested that my husband partispate in this study we are going to talk to his doctor tuesday about it we will also get his latest biospey report tuesday. our children and I want him to continue his treatment at moffitt but he is reluctant he is transfusion dependant now and platlets are very low nad white count is very low he is very weak i will post again when we know more
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Old Mon Jun 1, 2009, 10:30 AM
Suzanne Suzanne is offline
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Join Date: Mar 2008
Location: Long Island, NY
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My mother took place in this trial. She was on it for approxiamately 5 months. She did get some response in platelets and WBC, nothing too great. It is easy since it is pills and there really wasn't too many side effects. She did get a machine oil type body odor from the pills and nausea on third month. I read another member had the same thing happen.
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Mom 69 diagnosed with MDS RA 3/08
TLK-199 started 7/17/08 - no response
Vidaza started 12/15/08 - no response
Dacogen started 01/10 - no response
Bone Marrow Biopsy 10/10 - 13% blasts
Bone Marrow Biopsy 12/22/10 - 45% blasts - AML
I have an angel 1/4/11
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