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MDS Myelodysplastic syndromes

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Old Mon Apr 11, 2011, 02:05 PM
rondeb111 rondeb111 is offline
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Join Date: Jan 2011
Location: Troy, MO
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Dacogen/Fever

Dad in hospital for fever. Happened last month also, two weeks after Dacogen treatment. Red & white blood cell counts remain very low. Specifically neutrophils are below .1. Has anyone else had fever following Dacogen treatment? Was scheduled for bone marrow test today, had to post pone until after fever. Checking to see if blasts have gone down enough for transplant. Does anyone know the percentage of success with Dacogen at reducing blasts? White cells not recovering. Had two transfusions last month and two this month.
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Debbie, Daughter of Russell age 65, diagnosed MDS RAEB 2 January 2011. Initial blast 18%. No response to Decitabine, blasts up to 28% - Leukemia, Started revlimid & vidaza, 6/11- blasts down to 17%, 7/11had to stop all treatments due to infections. (1994 - C cell lymphoma, 2006 - Prostate cancer)
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