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#1
Fri Dec 4, 2015, 11:24 PM
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Day -5!!!
HELLO ALL!!
TONIGHT IS MY SECOND NIGHT IN THE HOSPITAL. I WAS ADMITTED YESTERDAY. I GOT MY CENTRAL LINE PUT IN AND STARTED MY CHEMO. FLUDARABINE. I'LL BE ON THAT ALL FIVE DAYS AND IN ADDITION TO THAT. ON SUNDAY I START ANOTHER CHEMO MED FOR THE LAST TWO DAYS. BUSULFAN. THEY HAVE GIVEN ME A MOUTHWASH TO RINSE WITH 3 TIMES A DAY. CHLORHEXIDINE AND IT GIVES ME REALLY DRY MOUTH. I'M STILL NOT ON ANY MEDS AT THE MOMENT. JUST FLUIDS RUNNING AT A HIGH RATE, WHICH CAUSES ME TO RUN BACK N FORTH TO THE BATHROOM.  BUT DOC SAYS ALL THE PILLS WILL START DAY BEFORE TRANSPLANT. BUT SO FAR SO GOOD. NO EFFECTS FROM CHEMO YET. DOC SAYS MAY TAKE UP TO A WEEK FOR THAT. SO FOR NOW. I'M JUST TAKING IT EASY.
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Kamara, 26, mother of 2.diagnosed AA July 2015, post BMT. currently on tacrolimus, acyclovir, diflucan, cipro. No sign of GVHD so far. 
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#2
Sat Dec 5, 2015, 02:12 AM
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Good luck, Kamara.
How much does your family get to be with you?
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#3
Sat Dec 5, 2015, 10:40 AM
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Thank You Neil.
I Have A Family Member With Me Everyday. For A Couple Hours So I'm Not Alone.
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Kamara, 26, mother of 2.diagnosed AA July 2015, post BMT. currently on tacrolimus, acyclovir, diflucan, cipro. No sign of GVHD so far.
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#4
Sat Dec 5, 2015, 12:02 PM
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Good Luck Kamara! Keep up that positive attitude! Glad you have family with you everyday.
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Tracey, mom & wife,age 58, dx MDS RAEB-2 4/15, normal cytogenetics, Update: SCT cancelled. Blasts at 67%. New dx AML.
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#5
Sun Dec 6, 2015, 10:55 PM
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Good luck Kamara - Enjoy the days you feel good and try not to fret too much the days you don't - Stay strong and positive -
Best wishes, Paul
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Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
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#6
Mon Dec 7, 2015, 08:25 PM
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You are in my thoughts and prayers, Kamara.
__________________
Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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