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Drugs and Drug Treatments ATG, Cyclosporine, Revlimid, Vidaza, Dacogen, ...

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Old Tue Feb 20, 2018, 11:16 PM
purigading purigading is offline
Join Date: Feb 2018
Location: Adelaide Australia
Posts: 1
Low risk MDS and the drug called Lenalidomide

I was diagnosed with low risk myelodysplastic syndrome (Male aged 69) as a result of a bone marrow biopsy. No treatment has been suggested at this stage, pending a further blood test review in 3 months time. In the meantime I am trying to assess what others may have encountered with treatment with low risk MDS. I did read that a drug called Lenalidomide was sometimes used in these early detections. Is this still the case? any other information about treatment for low risk MDS would be much appreciated. To those who reply many thanks in advance.
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Old Wed Feb 21, 2018, 11:40 PM
DanL DanL is offline
Join Date: Dec 2010
Location: Denver, CO
Posts: 542
I am sorry about the diagnosis, but am glad to hear that you were identified as lower-risk. There are a lot of treatments for MDS at the various stages, but a lot of it depends on symptoms, progression, and details of the biopsy, such as chromosome changes, gene alterations, etc.

Treatment varies from do nothing (referred to as watch and wait), to supportive treatments like blood transfusions, epoietin alfa, neupogen, or thrombopoeitin, to MDS approved treatments like Revlimid, Vidaza, and Dacogen, all the way to full blown chemotherapy with the potential for stem-cell transplant.

The tendency is to treat symptoms first to improve quality of life, then treat the disease to try to slow the progression once needed, and with MDS, although there are similarities, every patient is unique, and treatment plans are personalized.

As for your question about Revlimid, it is most effective in low-risk MDS, especially people with the deletion of the 5q chromosome, although it can be effective in some patients with normal chromosomes.
MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. No longer experiencing nor treating CGVHD. Working on fixing long-term side effects of AVN in hips and cataracts in eyes. Life is good!
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