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Pediatrics Treatment for juvenile patients

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  #1  
Old Thu Jan 31, 2013, 04:26 PM
Sfdcoach Sfdcoach is offline
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Searching for a similiar case as our son

Hi I'm the parent of a 3 y/o boy who has been diagnosed with AA in march of 2012 unfortunately this isn't his only diagnosis. He is also diagnosed PDD-NOS which lies on the Autism spectrum. He has 2 possibly 3 other medical issues as well I am in search of another similar case. I have been looking for another family like ours to compare notes and find help in suggestions on how and where to proceed on our way to a now suggested BMT. Please if anyone has any information contact me I'm starting to think my son is the only case with a child on the spectrum with AA.
Thank you. -T
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  #2  
Old Thu Jan 31, 2013, 07:08 PM
triumphe64 triumphe64 is offline
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I'm assuming his AA affects his hemoglobin, white cells, and platelets.
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Dallas, Texas - Age 75 - Pure Red Cell Aplasia since March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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Old Thu Jan 31, 2013, 07:37 PM
Sfdcoach Sfdcoach is offline
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Yes all of his counts are affected. Trying locate another parents with a child on the spectrum and AA to see if they have any advice or what they may have founf or courses of treatment and or specific facilities.
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  #4  
Old Thu Jan 31, 2013, 08:28 PM
ssdavi71416 ssdavi71416 is offline
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Talking

This group on facebook has many small children. You might try posting on this facebook page.

http://www.facebook.com/BandOfMother...mia?ref=stream
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Scott 51 yr SAA 3/2012. PTL 7, ANC 200. ATG finished 4/9/2012. 2/4/2013. TX independent:; PTL 133, ANC 3300, Hgb 13.4.
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  #5  
Old Thu Jan 31, 2013, 08:30 PM
Sfdcoach Sfdcoach is offline
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Thank you! Will definitely check it out
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  #6  
Old Sun Mar 24, 2013, 08:19 AM
shellshell shellshell is offline
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My nephew has AA and Autism. Your son is not alone.
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Michelle, Aunty of Christian age 5; diagnosed AA 2012; treated with ATG 2012; currently on cyclosporine
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