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#1
Mon Dec 3, 2007, 06:22 PM
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MDS 5q minus and Polymyalgia Rheumatica
I have had MDS 5q minus for 2 years and last spring I was also diagnosed with Polymyalgia Rheumatica. I have been taking Revlimid since April for the MDS - with terrfic results and am taking prednisone (15 mg) for the Polymyalgia Rheumatica (PMR). I am still in a lot of pain due to the PMR.
My question is: Are there others with MDS and PMR? If so, how are you doing and what type of medication are you on? Thank you. Jill
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I was diagnosed with MDS <5q in January 2006. In August I had blood transfusion of 2 pints and am currently on procrit shots everyother week. 
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#2
Tue Dec 4, 2007, 04:51 AM
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MDS 5q- and PMR
Hello Jill
Welcome to a fellow aussie. I have sent you a private message about my husband's trials with PMR. Fortunately it began to "burn out" after 3.5 years, a long time, but there is light at the end of the tunnel. He is also on Revlimid but it is beginning to stop working. Looking forward to hearing from you and keep smiling Helen
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Husband, MDS 5q- 2003. Transfusions,desferal infusions, Revlimid 2007 partial remission. David passed away Nov 2010 with untreatable heart arrythmia probably from iron overload.
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