Home         Forums  

Go Back   Marrowforums > Practical Issues > Insurance, Finances, Disability, Veterans Benefits
Register FAQ Search Today's Posts Mark Forums Read

Insurance, Finances, Disability, Veterans Benefits Your finances, insurance, job issues, and veterans benefits

Reply
 
Thread Tools Search this Thread
  #1  
Old Tue Jun 15, 2010, 09:06 PM
Debbie W Debbie W is offline
Member
 
Join Date: May 2010
Location: NJ
Posts: 202
Hope Lodge

And hopefully this is the correct forum to post the link to assistance for lodging in various locations.

Th criteria for the Hope Lodge in NYC is that the patient needs to travel more than one hour to receive treatment.

We are scheduled to stay there next week and are looking forward to seeing the facilities, meeting other people who are going through a challenging time, and not having to travel to NYC each day for treatment.

http://www.cancer.org/docroot/subsit...odge/index.asp

"...Currently, there are 29 Hope Lodge locations throughout the United States. Accommodations and eligibility requirements may vary by location, and room availability is first come, first served. To find a Hope Lodge and to learn more about a specific facility, please visit that location's page, or call the American Cancer Society toll free anytime, day or night, at 1-800-ACS-2345.

If there is not a Hope Lodge in your area, please call the American Cancer Society at 1-800-ACS-2345 for more information. Also you can visit Joe's House for additional lodging resources or enter your zip code on www.cancer.org's Find Local Resources page and select the category Housing."
__________________
Debbie, wife of Mike age 58, diagnosed RAEB 2 April 2010. Initial blast count somewhere between 10-15% then 20% after two treatments of Dacogen. Completed induction therapy 8/2/2010. BMB 8/31/10 - 4% blasts. SCT 10/1/2010. Relapsed in 10/2014, second transplant from same donor on 12/31/2014.
Reply With Quote
  #2  
Old Wed Jun 16, 2010, 12:36 AM
Neil Cuadra Neil Cuadra is offline
Owner
 
Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,497
Thanks, Debbie.

There really isn't a forum section for lodging assistance so this is as good a place as any, and it made a suitable addition to the Patient Resources and Support Groups list on our Resources page.
Reply With Quote
  #3  
Old Wed Jun 16, 2010, 09:36 AM
Debbie W Debbie W is offline
Member
 
Join Date: May 2010
Location: NJ
Posts: 202
Neil

and thank you adding the link to the resource page
__________________
Debbie, wife of Mike age 58, diagnosed RAEB 2 April 2010. Initial blast count somewhere between 10-15% then 20% after two treatments of Dacogen. Completed induction therapy 8/2/2010. BMB 8/31/10 - 4% blasts. SCT 10/1/2010. Relapsed in 10/2014, second transplant from same donor on 12/31/2014.
Reply With Quote
  #4  
Old Sat Jun 26, 2010, 09:11 PM
Debbie W Debbie W is offline
Member
 
Join Date: May 2010
Location: NJ
Posts: 202
What a treat!

Not only was the room comfortable, but they also had a kitchen and laundry on each floor in addition to the gathering area on the main floor and a large terrace only a half block from Penn Station.

Two companies sponsored a free dinner on different nights, afternoon tea and yoga classes on another night and then a Relay for Life Celebration on Friday night.

The best part was that we were able to meet other people, two people who recently had BMTs and one of them who was on the same trial as my husband, hopefully a glimpse towards the future. Both of the people who had BMTs are booked to stay for three months so they can be close to the hospital.

They have already confirmed our stay for the next cycle in mid-July and we look forward to seeing a few people who will be there again at the same time.

I'll post an update to our journey in the MDS forum.
__________________
Debbie, wife of Mike age 58, diagnosed RAEB 2 April 2010. Initial blast count somewhere between 10-15% then 20% after two treatments of Dacogen. Completed induction therapy 8/2/2010. BMB 8/31/10 - 4% blasts. SCT 10/1/2010. Relapsed in 10/2014, second transplant from same donor on 12/31/2014.
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Duarte California LLS/Community of Hope Support Group Marrowforums Support Groups and Communities of Hope 0 Sat Feb 7, 2015 06:31 PM
Walnut Creek California LLS/Community of Hope Support Group Marrowforums Support Groups and Communities of Hope 0 Fri Dec 5, 2014 11:29 PM
Milwaukee Wisconsin Community of Hope Marrowforums Support Groups and Communities of Hope 2 Tue Jul 8, 2014 11:44 AM
Hope, Steps & A Cure - Overview and Announcements Marrowforums March for Marrow 3 Sun May 1, 2011 01:36 PM
New Forum: Hope, Steps & A Cure Marrowforums Site Announcements 0 Tue Jun 15, 2010 06:26 PM


All times are GMT -4. The time now is 09:58 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2020, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright 2006-2020 Marrowforums.org