Home         Forums  

Go Back   Marrowforums > Regional Discussions > Your Local Area
Register FAQ Search Today's Posts Mark Forums Read

Your Local Area Connect with people in your city, state, province, or region

Reply
 
Thread Tools Search this Thread
  #1  
Old Thu Jul 31, 2008, 01:49 PM
Phyllis Phyllis is offline
Member
 
Join Date: Jul 2008
Location: Lake Worth, Florida USA
Posts: 3
Looking for support group in south Florida

We live in Lake Worth and are trying to find others who are dealing with MDS (RAEB) so that we may form a support group.
__________________
Husband started treatment for MDS ( RAEB) with Vidaza on 5/21/08. The latest hematology was WBC 1.0, RBC 4.13, hemaglobin 11.2, and platelets 60 on 7/28/08.
Reply With Quote
  #2  
Old Fri Aug 1, 2008, 08:59 AM
Dick S Dick S is offline
Member
 
Join Date: Jan 2008
Location: Florida
Posts: 189
Thumbs up

Quote:
Originally Posted by Phyllis View Post
We live in Lake Worth and are trying to find others who are dealing with MDS (RAEB) so that we may form a support group.
I'm not exactly in your back yard, I live in Sebring. However; I get my primary and Oncology care over there at the West Palm Beach VA Hospital, in fact I will be over there Tuesday Aug.5th for my next checkup. I would be very interested in what you could put together as there is not even a cancer support group here in Sebring. See my tag line for what I have, 2 1/2 years of agony. I can be reached at hidiso1024@vistanet.net or 1-863-386-0458. Good luck with your endeavor and keep me posted.

BTW, in 2003 the VA didn't have the ability to do heart stents and they shipped me over to JFK Hosp. in Lake Worth to have them put in. In my opinion an outstanding, first rate Hospital. FYI, they have a cardiac wing that is second to none.
__________________
Dick S, diagnosed Feb. 2008 with MDS. Last BMB April 2016. New diagnosis is CMML stage 1.

Last edited by Dick S : Fri Aug 1, 2008 at 09:48 AM.
Reply With Quote
  #3  
Old Fri Aug 1, 2008, 11:01 AM
ESeda ESeda is offline
Member
 
Join Date: May 2008
Location: Naples FL USA
Posts: 89
Hi Phyllis,

Welcome to the BMForum. My wife Nellie has MDS, dx in 03/08. We live in Naples and only know of you and Dick S that are near by, so far.

I see your husband just started Vidaza. Nellie just completed her third cycle and has shown great improvement. I am sure your husband will do the same. You can see her #'s shown in my signature below. Please let us know more about your husband so we can compare and be able to help comfort you throughout these challenging times.

All the best to you and yours.

Eli
__________________
Eli, husband of Nellie (64), dx 3/08 MDS RAEB-1 w/abs, 2nd BMB 9/08 after 4 cyls blast dn to .5, Vidaza reduced 50% on 11/19 after sudden drop in CBC, 8th cycle completed 12/26/08. BMB 2/09 blast 17%. Seven day Induction Therapy completed 3/23/09, Started Salvage Therapy 5/5/09. Stopped 5/8/09.
Reply With Quote
  #4  
Old Wed Dec 17, 2008, 02:11 PM
Eileen Eileen is offline
Member
 
Join Date: Nov 2007
Location: FL
Posts: 47
Question support group west FL

Hi Everyone,
Still looking for a support group near Clearwater or ST Petersburg FL
Sebring & Naples are a couple of hrs away,is there anyone closer?
Happy Holidays to you all,
Eileen
__________________
Eileen.72,dxMDS 2007.currently on vidaza,procrit & neuprogen.
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Spartanburg South Carolina LLS/Community of Hope Support Group Marrowforums Support Groups and Communities of Hope 0 Tue Oct 7, 2014 01:05 AM
Greenville South Carolina LLS/Community of Hope Support Group Marrowforums Support Groups and Communities of Hope 0 Tue Oct 7, 2014 12:21 AM
Charleston South Carolina LLS/Community of Hope Support Group Marrowforums Support Groups and Communities of Hope 0 Mon Oct 6, 2014 11:13 PM
Support in south Florida Phyllis Your Local Area 6 Tue Jul 26, 2011 09:25 AM
Anyone in South Florida? TheBirthofLove Your Local Area 3 Wed Mar 23, 2011 09:33 AM


All times are GMT -4. The time now is 09:58 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2020, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright 2006-2020 Marrowforums.org