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MDS Myelodysplastic syndromes

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  #1  
Old Thu Sep 13, 2012, 06:46 PM
ripcord1461 ripcord1461 is offline
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Location: Bronx, New York
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Talking Mylodyplastic Syndromes

Hello my good people. No matter what happens, never ever give up hope. I've been living with MDS for the past 12 years on blood transfusions and Neupogen injections. I was exposed to benzene in the work place back in 1993 or 1996 never knew I had it until 1999. It was one big shock! I have been receiving treatment since then. So keep on fighting. God bless us all.
Jerry Reed
Bronx, New York
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  #2  
Old Thu Sep 13, 2012, 07:32 PM
Neil Cuadra Neil Cuadra is offline
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Hi Jerry.

You set a nice example of survivorship. Thanks for the positive message.

Since it can take a while for MDS to be diagnosed, perhaps you actually had MDS for as long as 15 or 16 years.
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Old Thu Sep 13, 2012, 08:18 PM
milliken2 milliken2 is offline
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Jerry;
Like Neil said - thanks for the positive words about survivorship. I only wish my husband has that many more. And since he was on Coumadin for many years - with benzene being one of the properties in it - he got 'dosed' without even knowing it.
Take care - and keep up the positive attitude attitude.

Beth
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Beth - R.N., B.S.N and wife of recently diagnosed husband who has been classified at stage 4 MDS. and I can't help the one I love the most.
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Old Fri Sep 14, 2012, 09:43 AM
AngieA AngieA is offline
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Thanks for that. I really needed to read that today!
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Angie, wife to Bill age 65; Diagnosed MDS May 2012; Post mini MUDD almost 2 years. Has some GVHD in mouth, otherwise doing well.
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Old Fri Sep 14, 2012, 12:50 PM
slip up 2 slip up 2 is offline
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Jerry...and many many more healthy years...

Kate
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  #6  
Old Fri Sep 14, 2012, 02:26 PM
rkp rkp is offline
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Thanks for posting this message Jerry.It gives hope to others who are going through this....
Good wishes to you for healthy years ahead.
-RP
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RP, Daughter of SK age 66, diagnosed MDS July 2012
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