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Old Sat Dec 14, 2013, 12:32 AM
Tii Tii is offline
Join Date: Nov 2013
Location: Los Angeles, CA
Posts: 22
1 year birthday!

Just wanted to share that today (12/13/13) is my 1 year re-birthday, and it is a wonderful feeling. So much has happened in a year since my BMT, and I am also glad to share my new birthday date with my mother, who was not able to be here for me throughout my illness.

I am not happy that MDS happened to me, but I am happy of what this experience has done for me. To be more mindful, appreciative, kind, careful. It really has changed me to be a new person.

I wish all the other group members to hopefully someday feel the gratitude and joy what I felt today. Keep your faith and trust in recovery!

Tii - 37 yrs, MDS, T-cell leukemia, BMT sister donor.
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Old Sat Dec 14, 2013, 01:48 AM
Neil Cuadra Neil Cuadra is offline
Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,487
Congratulations! Getting to one year out is a major milestone!
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Old Sat Dec 14, 2013, 07:17 AM
SLB SLB is offline
Join Date: Mar 2012
Location: Brisbane, Queensland, Australia
Posts: 130
Congratulations!! and happy re-birthday to you!
Sharnie, 37yo, dx Mar 2012 RAEB II 13% blasts. 8 months of Vidaza. Transformed to AML in Nov 2012, induction chemo, no remission. 2nd lot of chemo, remission achieved. SCT with 8/10 match, Mar 2013.
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Old Sat Dec 14, 2013, 08:37 AM
DebS DebS is offline
Join Date: Mar 2013
Location: IL, WI
Posts: 154
Happy birthday! Best wishes for a continued healthy future!
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Old Sat Dec 14, 2013, 11:01 AM
Whizbang Whizbang is offline
Join Date: Aug 2013
Location: Central NJ
Posts: 299
Happy 1 year!!!!

All the best and contiuned progress, and a Happy New Year (soon)...

God Bless,
Married, father of three daughters; now 46; diagnosed w/ Major form MDS 6/18/2013; had low counts across the board; Multiple chromosome abnormalities; Finished 2nd round Dacogen 9/13; SCT - Oct. 31, 2013; Sibling match 10/10 ; 5.5% blasts down to 3%, now 1% (post BMT)
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Old Sat Dec 14, 2013, 01:02 PM
Heather8773 Heather8773 is offline
Join Date: Jan 2013
Location: Houston, TX
Posts: 254
Amazing!! So happy you are enjoying this milestone!!!! You earned it Tii!!!
Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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Old Sat Dec 14, 2013, 07:08 PM
mausmish mausmish is offline
Join Date: Mar 2010
Location: Maryland
Posts: 450
Congratulations and happy rebirthday!
Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
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Old Sat Dec 14, 2013, 07:40 PM
Kathy S Kathy S is offline
Join Date: Nov 2013
Location: Leesburg, Fl
Posts: 72
Thumbs up

Congratulations and Happy Birthday and many many more. I know your feeling of changing your feeling of importance in your life. Although this is not something I would wish on anyone, what you can get from the journey can be life changing. I know it has been for my husband and I.
Continued healing on your life journey.
Kathy,wife of 69 year old male with DX June 2013 with MDS= RAEB 2refractory with Extra Blast Very High Risk WBC 1.9-RBC 2.29-HGB 8.1-PLT 32-, as of Aug 2013:. BMB 12/4/13= WBC 5.57/RBC 4.86/HGB 15.5/HCT 42.8/RDW 49.6/PLT 188. 3% blast.BMB 4/11/14 WBC1.6,PLT12,RBC2.6,HGB9.2
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Old Sun Dec 15, 2013, 09:50 PM
Lori Patrick Lori Patrick is offline
Join Date: Oct 2010
Location: Indianapolis, Indiana
Posts: 166
Tii: YAY for your one year rebirth day! That is a great feeling to look back and see where you were and one year later where you are. I am so happy for you! Lori
Lori, female age 53 dx MDS-RAEB-II 15% blasts 10-2010. Induc Chemo 10/14/10 for 7 days - results unacceptable so 5 additional days chemo. Complete Remission 12/10/10!! SCT 1-11-11 remission achieved!!! BMB 1-29-11 100% Donor! cgvh eyes,skin (Caringbridge.org/visit/loripatrick)
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Old Sun Dec 15, 2013, 10:15 PM
Tii Tii is offline
Join Date: Nov 2013
Location: Los Angeles, CA
Posts: 22

Thanks to everyone!
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Old Sun Dec 15, 2013, 11:22 PM
dfantle dfantle is offline
Join Date: Jan 2012
Location: bellevue, wa
Posts: 150

Tii, congratulations and Happy re-Birthday . Its wonderful that you were able to celebrate this amazing day with your Mom.
Age 54; DX Heavy Chain (AH) Amyloidosis 6/10; AutoSCT 3/11; Amyloidosis remission 6/11; DX SAA 7/11; Horse ATG 3/12; Mini MUD SCT 1/13; Recovered from SAA 5/13 & feeling great
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