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#1
Wed Apr 24, 2013, 07:18 AM
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Is Cam OK?
Hi - has anyone heard from Cam lately? I'm concerned because I haven't seen a post from him in quite a while.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood. 
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#2
Wed Apr 24, 2013, 02:52 PM
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I follow is Facebook page and he got out of the hospital a day or two ago
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Angie, wife to Bill age 65; Diagnosed MDS May 2012; Post mini MUDD almost 2 years. Has some GVHD in mouth, otherwise doing well. 
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#3
Thu Apr 25, 2013, 06:52 PM
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Thanks. Cam is such a positive influence in the forum.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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#4
Thu Apr 25, 2013, 10:29 PM
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Awe I think that shows in how many "views" this post has gotten!
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium. 10/10 MUD 10/10/13 Now no PNH or AA. Mixed Chimerisim
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#6
Sat May 11, 2013, 12:15 PM
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I am back. I was in the hospital for 2 weeks with MRSA/GVHD/drug reaction/ I am not sure they knew. In fact the Dr told me after thefact there were a few days there that if the cards had not fallen in the right direction things were getting really dicey. I have now lost a lot of weight. Prior to the BMT I weighed 315 pounds (I am 6-4) now I am down to 253. I have PT 3 times a week to help me gain my muscle back and for me to walk again. But they have me off the ropes and I am swinging again. The new plan is to get me off the prednisone they the anti immune drugs. I really do appreciate everyone checking on me. I was knocked down and had to crawl out of a whole but there is still a lots of fight left in this boy...
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Cam, BMT 12/6/12 for MDS, diagnosed August 2012 beat it in December 2012
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#7
Sat May 11, 2013, 12:31 PM
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Cam
So glad you are doing better. I have been following your posts on Facebook. I have been praying for you and your family.
You have been an inspiration for me. I am a little older (59) but I will be going thru the transplant when they find a donor. I really knew nothing about this disease until I found this forum & I am so thankful I did. Keep us posted on your progress & I will keep you & your family in my prayers. Vickij
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62 yr old female. dx AA 3/12.treated with ATG 4/12.dx MDS 4/13. MUD BMT on June 25th,2013
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#8
Sun May 12, 2013, 08:33 AM
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I really do appreciate all the prayers and kind words. Every morning I get up and look at my family and decide to give this disease all I have. Since I am unable to work it is my job.. I am used to working 2 or 3 jobs so that is what I give towards my fight. Sometimes it will get the upper hand on you but keep getting up. That is all we have... To all the Mothers fighting this disease or helping others may you get a break for a few days as a Mothers day present...
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Cam, BMT 12/6/12 for MDS, diagnosed August 2012 beat it in December 2012
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