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MDS Myelodysplastic syndromes

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  #26  
Old Sat Apr 21, 2018, 12:51 AM
AliceKay1 AliceKay1 is offline
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Good news, Thomas!

That's wonderful news, Thomas. Glad to hear it!
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AliceKay1, 79 years old, dx MDS 2017, being treated with Vidaza
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  #27  
Old Mon Apr 23, 2018, 06:44 AM
Sue&Dave Sue&Dave is offline
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Hi Thomas - it's nice to hear you have had the same positive effects as my husband on Vidaza. I am curious about reducing the treatment down to 5 days. When was this decision made? Did it take some getting used to? I'm always looking for ways to minimize the intrusion this disease has on our lives.
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  #28  
Old Tue Apr 24, 2018, 01:13 AM
AliceKay1 AliceKay1 is offline
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Age?

Quote:
Originally Posted by Thomas Hawkinson View Post
I have been on Vidaza for 14 cycles. Monday, April 23rd will be the beginning of my 15th round. I have had excellent results, to the point that the 7 day regimen is now down to 5 days each cycle. So far, no transfusions or other interventions. Side effects have been minimal.
Thomas, would you mind telling us a little about yourself? Your age, for instance?
Alice
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  #29  
Old Wed May 30, 2018, 03:28 PM
Thomas Hawkinson Thomas Hawkinson is offline
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Quote:
Originally Posted by Sue&Dave View Post
Hi Thomas - it's nice to hear you have had the same positive effects as my husband on Vidaza. I am curious about reducing the treatment down to 5 days. When was this decision made? Did it take some getting used to? I'm always looking for ways to minimize the intrusion this disease has on our lives.
Dr. List, my oncologist at Moffitt, suggested the change this past January. I just finished my 16 cycle and all is good so far. It has made my life a little easier and allows for me to have a little more freedom!
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  #30  
Old Wed May 30, 2018, 03:42 PM
Thomas Hawkinson Thomas Hawkinson is offline
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Originally Posted by AliceKay1 View Post
Thomas, would you mind telling us a little about yourself? Your age, for instance?
Alice
I am presently age 70. A former Vietnam veteran with exposure to Agent Orange back in the late 60s.
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  #31  
Old Thu May 31, 2018, 01:59 AM
AliceKay1 AliceKay1 is offline
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Thank you

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Originally Posted by Thomas Hawkinson View Post
I am presently age 70. A former Vietnam veteran with exposure to Agent Orange back in the late 60s.
Thanks for answering my question, Thomas. It's great to hear you're doing well on only five days of vidaza.

I only wondered about your age because I'm eighty, and so many people on this forum are much younger. The disease may affect us differently at different ages, e.g., no transplants for people my age.

And thank you for your service.
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