Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > MDS
Register FAQ Search Today's Posts Mark Forums Read

MDS Myelodysplastic syndromes

Reply
 
Thread Tools Search this Thread
  #1  
Old Thu Apr 23, 2015, 09:34 AM
MichaelA MichaelA is offline
Member
 
Join Date: Apr 2015
Location: Columbus, Georgia, USA
Posts: 2
Worsening sore

Hello, everyone! My mother, age 71, has MDS, moving closer to AML, I'm afraid. Her platelets have bottomed out over the past four months or so. The lowest platelet count has been 3. She usually has three transfusions a week, plus blood, chemo, and iron.

She frequently has blood blisters in her mouth and nose bleeds. Over the past month, a blood blister on her wrist has developed into a horrible sore. In this time, it has turned black, has opened up and is oozing blood. In the past week, a hole in the middle of the sore has developed and has the smell of deteriorating flesh.

Has any heard or known of this? It is so worrisome and is causing her a lot of pain.
Reply With Quote
  #2  
Old Thu Apr 23, 2015, 12:04 PM
Marlene Marlene is offline
Member
 
Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
They should have a wound specialist look at the sore and possibly start antibiotics. They can culture it too. Can I ask why is she getting iron? Each red cell pack provides about 250 mg of iron. Bacteria thrives in an iron rich environment.

Zinc can help with wound healing. Her zinc may be low but it can be difficult to know its true status.
__________________
Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
Reply With Quote
  #3  
Old Tue May 26, 2015, 02:53 PM
Kathy Kathy is offline
Member
 
Join Date: May 2015
Location: South Carolina
Posts: 1
My husband had a sore like this first. Before Dx of MDS. This is how we actually finally got to the dx of MDS. Thought it was a spider bite...long story. It was not a spider bite. It is/was a type of ulcer caused by an underlying condition. My husband's underlying condition is MDS.

Not saying that she has what he had/has...He had Pyoderma Gangrenosum. Just putting it out there if she hasn't found any answers and/or relief.
Reply With Quote
  #4  
Old Tue May 26, 2015, 03:42 PM
MichaelA MichaelA is offline
Member
 
Join Date: Apr 2015
Location: Columbus, Georgia, USA
Posts: 2
Thanks for this information, Kathy!

My mom lost her battle with this cruel disease on May 1, but not before a fight to the end. The MDS progressed to AML. The sore only worsened. With the prognosis of AML, there was little to do as far as treating the wound. I am glad to know the name of the skin/ulcerated issue. If I can, I will post a photo.

Prayers for your husband. By the way, my mom was treated in Anderson, S.C.
Attached Images
File Type: jpg image.jpg (31.2 KB, 105 views)
Reply With Quote
  #5  
Old Wed May 27, 2015, 04:22 AM
Cheryl C Cheryl C is offline
Member
 
Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 843
That sore looks horrendous and oh so painful! I'm so sorry your mum had to live with that on top of MDS. My deepest sympathy to you and your family, Michael. You can take comfort that she is at peace and resting now.
__________________
Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Greg H - Vidaza as a Bridge to Transplant Greg H Transplants 54 Sun May 7, 2017 09:42 PM
may be Cgvhd, irritation in eyes sore throat Shikha tomar Tell Your Story 3 Fri Jul 1, 2016 08:02 PM
Red sore spots underarms and on scalp kyis MDS 2 Wed Jan 1, 2014 10:53 PM
How to heal a sore in mouth? Heather8773 AA 7 Fri May 3, 2013 03:25 AM
Cyclosporine and rapidly worsening thrombocytopenia? chrplunk Drugs and Drug Treatments 15 Mon Jun 11, 2012 05:26 PM


All times are GMT -4. The time now is 09:53 AM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org