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  #1  
Old Sun Jul 20, 2008, 12:08 PM
Edbol Edbol is offline
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Join Date: Jul 2008
Location: Lanesville, IN
Posts: 12
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My husband (now 64)was diagmosed in 2000 with RARS hgb 7 treated with B-6 pills and B-12 shots. hgb ^10.1 over 1 yr. Doing well until 4 months ago. Fatigue hgb 7.4, WBC 3.8, RBC 2.18, HCT 23. Has received 10 units of blood and has received 1 injection weekly for 6 weeks of 300mcg Aranesp. hgb 7.2 prior to blood transfusion, after 8.1 highest. no response to shots. Will be starting another round of shots ^ 400mcg Aranesp. Anyone else out there doing this? Also he has been experiencing major constipation causing external hemorrhoids. His current diagnosis is RCMD less than 5% blasts.
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  #2  
Old Mon Oct 13, 2008, 08:24 PM
Edbol Edbol is offline
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Join Date: Jul 2008
Location: Lanesville, IN
Posts: 12
Update on my husband Ed

Hello everyone. I want to thank you for all of your help when I had questions. Ed passed away on Oct.3 at age 64. He was diagnosed in 2000 with RARS. He did well until May of this year. He received a total of 26 units of blood, 12 shots of aranesp, was on 2gms of exjade daily and received 1 cycle of Vidaza. He worked a half day 2 days before he was hospitalized. He was in the hospital 6 days and had multi-organ failure. He will be sorely missed. I have 120-500mg exjade tablets unopened if anyone is interested. My e-mail is brenbol@yahoo.com. thanks again. Brenda
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  #3  
Old Mon Oct 13, 2008, 09:56 PM
Zoe's Life Zoe's Life is offline
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Join Date: May 2007
Location: Logan, Ohio
Posts: 127
Brenda,

I am sorry to hear of your husband's death. Praying for you and your family.

Zoe
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Diagnosed MDS-RA 5q- at age 47 (November 2006). Aranesp 2/07, good response.
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  #4  
Old Mon Oct 13, 2008, 11:33 PM
LynnI LynnI is offline
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Join Date: Jun 2008
Location: Ontario, Canada
Posts: 99
I am so sorry for your loss.
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  #5  
Old Tue Oct 14, 2008, 03:25 PM
ESeda ESeda is offline
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Join Date: May 2008
Location: Naples FL USA
Posts: 89
Please accept our heart felt condolances for your families loss. God Bless

Eli and Nellie
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Eli, husband of Nellie (64), dx 3/08 MDS RAEB-1 w/abs, 2nd BMB 9/08 after 4 cyls blast dn to .5, Vidaza reduced 50% on 11/19 after sudden drop in CBC, 8th cycle completed 12/26/08. BMB 2/09 blast 17%. Seven day Induction Therapy completed 3/23/09, Started Salvage Therapy 5/5/09. Stopped 5/8/09.
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  #6  
Old Tue Oct 14, 2008, 06:35 PM
Ruth Cuadra Ruth Cuadra is offline
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Join Date: Jul 2006
Location: Los Angeles, California
Posts: 616
Dear Brenda,

Neil and I are so very sorry to learn of Ed's death. We hope that Marrowforums was of some help to you since you joined us earlier in the year. Patients and caregivers who follow you here will benefit from your participation and recording of the difficulties that Ed faced.

We hope that your memories of your husband in happier, healthier times are a comfort to you now.

Sincerely,
Ruth Cuadra
Neil Cuadra
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